BEE Study

BEE Study

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The BEE Study aims to investigate brain based predictors of emerging autism in infants with early epilepsy. It is funded by Epilepsy Research UK and Autistica.

11/05/2022

A reminder that by participating in our BEE-PP survey, you are given the choice to be entered into our prize draw, where you could win a voucher worth ยฃ25! ๐Ÿ ๐Ÿ’ธ

Hi everyone!๐Ÿ˜Š

Just a reminder that the BEE-PP is still open and looking for new respondents for our survey!๐Ÿ We're looking for parents of children up to age 15-years 11-months with epilepsy, diagnosed between 1- and 36-months-old to contribute their opinions on epilepsy research!

This is a really valuable opportunity for these parents to share their opinions on what epilepsy research should focus on, as we ask what may be currently missing when it comes to research and the understanding of epilepsy.

We believe the research priorities that matter the most are those that are put forward by people directly affected by the research that is being produced.

Help us reach more potential participants by sharing this post and visiting our website for more information on our work within the BEE-PP project ๐Ÿ

https://www.beestudy.co.uk/bee-pp

27/04/2022

Hi everyone!๐Ÿ˜Š

Just a reminder that the BEE-PP is still open and looking for new respondents for our survey!๐Ÿ We're looking for parents of children up to age 15-years 11-months with epilepsy, diagnosed between 1- and 36-months-old to contribute their opinions on epilepsy research!

This is a really valuable opportunity for these parents to share their opinions on what epilepsy research should focus on, as we ask what may be currently missing when it comes to research and the understanding of epilepsy.

We believe the research priorities that matter the most are those that are put forward by people directly affected by the research that is being produced.

Help us reach more potential participants by sharing this post and visiting our website for more information on our work within the BEE-PP project ๐Ÿ

https://www.beestudy.co.uk/bee-pp

About | The BEE Study 14/03/2022

โ€ผ๏ธ A reminder that we are still recruiting participants for the BEE-PP project, which is seeking to understand parent priorities in upcoming epilepsy research! This is a really important opportunity for parents of children with epilepsy to voice their personal concerns, and hopefully direct research into addressing them!

If you want to learn more about the BEE-PP project, or the adjacent BEE study, please visit our website beestudy.co.uk for all relevant information about both studies!

Thank you for your interest!๐Ÿ

For more direct links:
BEE-PP project -> https://www.beestudy.co.uk/bee-pp
BEE study -> https://www.beestudy.co.uk/about-bee

About | The BEE Study Autism and epilepsy commonly co-occur, with up to 40% of children with epilepsy also being diagnosed with autism. Epilepsy significantly affects quality of life and shortens life expectancy in autistic individuals, but the reasons for these associations are largely unknown. Previous research has oft...

01/03/2022

๐Ÿ“ขRECRUITMENT is NOW OPEN for The Brain development in Early Epilepsy Study!๐Ÿ“ข

We are looking for baby scientists aged between 1- and 10-months old to take part in the BEE Study!๐Ÿ

Follow this link to our website to learn more about what we're doing and how to take part! https://www.beestudy.co.uk/

Please register your interest here if you meet our participant criteria - https://www.beestudy.co.uk/contact

Please share if you can so we can reach more potential recruits! Thank you๐Ÿ

16/12/2021

We have just published our first newsletter! We want to keep you up to date with the progress of the BEE-PP project and the BEE study, and also allow you to get to know the team better!

To take a look at our Christmas newsletter, please follow the link below! Merry Christmas from the BEE Study team!! ๐Ÿ๐ŸŽ„

www.beestudy.co.uk

BEE-PP | Mysite 22/11/2021

Recruitment is continuing for the BEE-PP!

We are looking for parents of children aged from 1-month to 15-years 11-months who were diagnosed with epilepsy between 1-24-months old to respond to our survey, in order for us to collect a set of research priorities for early development in epilepsy. If you match the criteria or know someone who could, please visit our website for more information on how to participate๐Ÿ˜Š๐Ÿ

BEE-PP | Mysite Before we begin the BEE study, we want to hear from parents and carers of young children with early-onset epilepsy to understand what is most important to investigate. In research this is known as Patient and Public Involvement (PPI). PPI is the active collaboration between patients, the public and....

BEE-PP | Mysite 11/11/2021

๐Ÿ“ข The BEE-PP project is aiming to gather research priorities for early behaviour and development in early epilepsy!๐Ÿ“ข

If you are a parent/carer and your child is between 1-month to 15-years 11-months old and was diagnosed with epilepsy between 1- and 24-months old, we would love to hear from you!

Please visit our website https://www.beestudy.co.uk/bee-pp for more information and a link to the survey! Thank you๐Ÿ

BEE-PP | Mysite Before we begin the BEE study, we want to hear from parents and carers of young children with early-onset epilepsy to understand what is most important to investigate. In research this is known as Patient and Public Involvement (PPI). PPI is the active collaboration between patients, the public and....

BEE-PP | Mysite 10/11/2021

โ—๏ธWe have updated the age criteria for the BEE-PP study to include children up to 15-years and 11 months old who were diagnosed with epilepsy between 1- and 24-months oldโ—๏ธ Please consider taking part if your child fits this new, extended range or share so we can reach more potential participants!

Thank you!

BEE-PP | Mysite Before we begin the BEE study, we want to hear from parents and carers of young children with early-onset epilepsy to understand what is most important to investigate. In research this is known as Patient and Public Involvement (PPI). PPI is the active collaboration between patients, the public and....

BEE-PP | Mysite 28/10/2021

We are continuing to look for respondents on our BEE-PP survey!

This project involves collecting parent research priorities in the field of early-onset epilepsy and we would love to hear your opinions! If your child is currently aged 11 or under and was diagnosed with epilepsy between 1-12 months of age please consider taking part! ๐Ÿ

Visit the BEE-PP website for more details -

BEE-PP | Mysite Before we begin the BEE study, we want to hear from parents and carers of young children with early-onset epilepsy to understand what is most important to investigate. In research this is known as Patient and Public Involvement (PPI). PPI is the active collaboration between patients, the public and....

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