14/03/2025
What an amazing Orange turnout by staff on Wednesday, raising awareness of CLN2 Battens Disease.
Battens is a rare, progressive disease that attacks the nervous system and causes life limiting symptoms. Without the vital infusion treatment every 2 weeks the condition will progress quickly. Unfortunately, funding is due to be stopped in May 2025.
Families of children affected by Battens, including an ex-pupil of ours, James, went to parliament on Wednesday to peacefully protest and raise awareness. Please spread the word and repost!