Young Epilepsy

Home
United Kingdom
Lingfield
Young Epilepsy

Directions Website

Epilepsy can be one of the most frightening and isolating conditions a child can experience.
(1)

20/10/2026

Do you want to help shape autism and epilepsy research and care?

Our research team is exploring a new type of brain-scanning technology called OPM-MEG and wants to hear directly from autistic children and young people about their experience of the equipment and environment.

Taking part does not involve a brain scan. You will be invited to visit our research centre, in Lingfield Surrey, try on the OPM-MEG helmet, explore the scanning environment and share feedback about what works well and what could be improved.

We want to hear from autistic children and young people with epilepsy, or suspected epilepsy.

📅 Appointments are available during the half-term break.

Your feedback will help make future research and clinical assessments more accessible and inclusive for autistic children and young people.

👉 Interested in taking part? Register here: https://ow.ly/E8uA50ZZqTS

Or you can email/call:
📧 [email protected]
📞 01342 831273

Thank you for helping us shape the future of autism and epilepsy research. 💜

19/10/2026

Could you host a fundraiser for Young Epilepsy this Christmas?

Whether it's a bake sale, coffee morning, raffle, quiz night or festive jumper day, every pound you raise can help support children, young people and families affected by epilepsy.

Better still, if you save what you raise offline and donate it during our Big Give week (1–8 December), your donation will be DOUBLED!

✅ £25 becomes £50
✅ £50 becomes £100
✅ £100 becomes £200

When a child is diagnosed with epilepsy, life can change in an instant. Families are often left frightened, overwhelmed and unsure what comes next. Too many feel they are facing it alone. Your fundraising can help provide information, support, reassurance and hope when it's needed most.

This Christmas, help a frightened child feel safe again.

To find out more and get involved visit - https://www.youngepilepsy.org.uk/double-your-community-fundraising-christmas

If you're fundraising during Epilepsy Awareness Month this November, it's also a wonderful opportunity to raise awareness and help more people understand the impact epilepsy can have on children, young people and families.

17/10/2026

🎄 Looking for a meaningful way to start the festive season?

Join us in Covent Garden this December for a special Christmas concert celebrating the incredible talents of young people with epilepsy.

Set in the beautiful surroundings of St Paul's Church, the evening will feature performances from talented young people from across the UK alongside professional musicians and a choir. There will be festive music, mince pies, refreshments and the chance to come together as a community while helping support children and young people with epilepsy.

Whether you're connected to epilepsy, have supported Young Epilepsy before, or simply love a Christmas concert, we'd love to welcome you.

📅 Wednesday 2 December 2026
📍 St Paul's Church, Covent Garden

Find out more and book your tickets: https://www.youngepilepsy.org.uk/new-events/together-christmas-concert-in-covent-garden

16/10/2026

When Amaya was diagnosed with JME (Juvenile Myoclonic Epilepsy), the future she'd imagined for her daughter changed completely.

She'd spent years working towards a career in musical theatre. She auditioned for prestigious performing arts schools and got in. But then, in one of the hardest decisions of her life, she chose not to go.

As a parent or carer, watching your child navigate a similar kind of crossroads can be incredibly difficult. Amaya's story is a reminder that adapting to epilepsy isn't giving up. It's finding a new, fulfilling path forward 💜

And from her own experience, Amaya shares the things that helped her keep going. If your child is facing their own crossroads right now, her story might offer some comfort and a helpful next step: https://ow.ly/vY4T50ZSXBE

15/10/2026

What would you do before brain surgery?

Lev chose to keep moving forward and focus on his well-being and fitness to help him prepare him for his surgery.

After experiencing the challenges epilepsy can bring, Lev decided to take on on a 100-mile challenge of his own. His story is a powerful reminder of the resilience, determination and strength shown by so many young people living with epilepsy every day.

Young people like Lev face challenges most people never see, but their stories remind us what's possible with the right support.

This October, hundreds of people are taking on the 100 Miles in October challenge to stand alongside children and young people living with epilepsy and help ensure they don't face those challenges alone.

Every mile you complete and every pound you raise helps support children, young people and families affected by epilepsy through vital services, support and groundbreaking research.

Together, you've already raised over £44,500 towards the £100,000 target.

Every mile matters and every donation helps ensure no child faces epilepsy alone.

💜 Heart this post and leave a message of encouragement for everyone taking part this month.

Still thinking about joining? There's still time to get involved - https://100milesinoctober.youngepilepsy.org.uk/

14/10/2026

£25,000 is up for grabs when you join our weekly lottery.

Help change the lives of children and young people living with epilepsy by taking part 💜

Every ticket helps fund:
✅ Campaigning for children's rights
✅ Better diagnosis and treatment
✅ Support to help young people thrive in school and everyday life

Win or not, every play helps build a world where children living with epilepsy feel safe, confident and included.

🍀 Click here if you're feeling lucky: https://ow.ly/yg0n50ZUA6P

13/10/2026

What difference does epilepsy make to how active children are?

That's the core question driving our PACE Prime study 🔍

We're looking for children aged 6-10, with or without epilepsy, to take part in the research that will help answer that question.

Getting involved will directly contribute to improving the lives of children living with epilepsy for years to come. And as a thank you, every participant will receive a £15 Amazon voucher.

📲 If you think your child would be the right participant, sign up today: https://ow.ly/b4kQ50ZSLsq

And please share this with any parent or carer whose child could get involved too.

12/10/2026

When epilepsy changes the way your child experiences the things they love, it can be hard to watch. And even harder to know how to help 💜

Dian's story gently shows that epilepsy doesn't have to mean letting go of the things that matter. Sometimes it just means finding a new, different way back in.

His journey is one that many parents and carers will find both familiar and hopeful. Read how he did it, one piece at a time: https://ow.ly/PUiM50ZSXAr

11/10/2026

🎄 Send a card that makes a difference this Christmas.

Our 2026 Christmas cards have arrived, with four festive designs to choose from.

As you share Christmas wishes with family and friends, you can also help support children and young people living with epilepsy. Every pack sold helps fund vital research and specialist support for children, young people and families affected by epilepsy.

✨ Packs of 10 cards from only £4.95

If you're starting your Christmas shopping early, why not choose cards that help make a difference?

🛍️ Shop now: https://youngepilepsy.shop/products/christmas-card-collection?variant=58575817638271

09/10/2026

"It's almost like muscle memory."

When epilepsy affects memory, finding routines that work for you can make a real difference.

In this clip from our latest Let's Talk About Epilepsy podcast episode, Annie shares how sticking to a routine helps them remember important things like taking medication, and why being honest with yourself when you need reminders is nothing to be ashamed of.

Whether it's setting reminders, writing things down or taking medication at the same time each day, small habits can make everyday life feel more manageable.

🎧 Watch or listen to the full Effects on Memory episode of the Let's Talk About Epilepsy podcast, available now on Spotify, YouTube, Apple Podcasts and all major streaming platforms.

🧠 Looking for more support? Explore MyEpilepsyMind, our free online wellbeing course for young people living with epilepsy: https://ow.ly/TbzX50ZVx3t

Remember epilepsy is a highly individualised condition. The information, experiences and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support.

If you're child is feeling sad, worried or lonely, you or they can text PURPLE to 85258 to start a conversation with a trained Shout volunteer 24/7.

Address

St Piers Lane
Lingfield
RH76PW

Website

https://www.youngepilepsy.org.uk/

Alerts

Be the first to know and let us send you an email when Young Epilepsy posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Want your school to be the top-listed school/college in Lingfield?