The KIND Research Group

How can we talk about ASSISTED DYING with people with a learning disability? We’re in the middle of a pilot study, listening to their thoughts, questions and concerns. So illuminating, giving us much food for thought. Interviewing 8 people this week. Here are our props. Tough subject but people were so happy to be listened to. Hoping to publish results later this year

Downs Syndrome Research Foundation UK
Mencap

🤝 NEW BLOG POST 🤝

Irene Tuffrey-Wijne writes about how important relationships are at the end of life.

Good care shouldn't just focus on someone's physical needs, but their need to feel connected and loved.

What would end of life care look like if policies and practices centred people’s need for connection and belonging?

55. The need for relationships at the end of life I have been thinking about this: How can we support people’s ongoing need for relationships as their lives draw to a close? This may be especially important for people with a learning disability. To be ‘seen’ and known as a person, they rely on the relationships, community and social structure...

📢 WEBINAR on 11th June, 13.00-13.45

❓ How can we make sure the deaths of people with a learning disability don't come as a surprise? How can we recognise, consistently and in good time, that they might need palliative care?
❓What can we learn when we spent time with people with a learning disability who are at the end of life, and listen to them, their family, friends and carers?

JOIN US! Sign up here: http://tiny.cc/fid3101

Intensive few days of filming with the Staying Alive and Well Group for the next LeDeR report. Well done everyone!

👂 NEW BLOG POST 👂

Listening might sound simple, but it's one of the most important skills we can learn as researchers - especially when we work on sensitive topics like death and dying.

Last month, members of The KIND Research Group came together for a listening skills training day. The day was designed from the start so that everyone on our team, colleagues with and without a learning disability, could build confidence in listening to and supporting others.

Christina Robin, drawing on her experience with Samaritans, worked with Fred Inglis and Jo Giles to develop and deliver the training. Here, she reflects on the day

https://www.dappleproject.com/post/53-everyone-can-learn-to-be-a-better-listener-reflections-from-a-kind-training-day

The Staying Alive and Well group got together today, to work on the accessible video version of the next LeDeR report. Difficult job but this group works so hard to try and get it right. Getting ready for another day of filming tomorrow!