30/07/2026
A day in the life of a SEN mum!! Paperwork, paperwork and more paperwork. I hate to imagine how hard it is to get support if you don’t understand any of this! When you have a child with SEN, there’s a good chance a parent also has SEN - one of Evan’s diagnoses is dyslexia - imagine how hard this paperwork would be if I was also dyslexic!
It feels so wrong that we have to fight so hard for our children. This paperwork is every 2 years so we can have some additional funding for Evan. I say this because some people feel bad claiming DLA for their child. Just think how much you spend, whether it’s buying adapted clothing (bamboo, seam-free socks is one of our regular purchases - which have to be replaced when they ‘don’t feel right!’) Evan struggles to ride a bike so he wants a specialised one he can ride (this comes in at £1600). The trips out that result in coming home because it was too overwhelming, only for him to decide he regrets it and wants to go back! Adapted cutlery, adapted pens, a plethora of adaptive clothing. The hours of paperwork, the many hospital appointments (fuel to get there, parking fees once there) and the many, many hours of lost sleep. Don’t feel bad for claiming DLA - it makes all of these things a little more manageable, it means we can give our children a snap shot into a more ‘normal’ life.
Every child who has additional needs should receive additional funding, you’d be shocked at how many parents reduce their working hours because they can’t get appropriate child care or because they spend so much time doing paperwork, or attending hospital appointments.
Some people suggest that parents want their child labelling just so they can claim this money. Trust me, any parent who rides this rollercoaster isn’t doing it just for the money!! Sadly, I have come across parents who do this but I can assure people, there are many of us who would give up every penny if it meant our child didn’t need these adaptations. I wouldn’t change Evan for the world, he is an incredible boy who has an amazing and unique set of skills - but I would make these processes easier and more accessible if I could.