ASD my Kids and Me

17/07/2026

https://c.org/BLScbDJPXS

Hi everyone
Would you mind signing and sharing for me please, it’s been a long journey and full of stress but I’m determined to fight to the end xx

Demand justice for all victims of sexual abuse

13/05/2024

Today big starts a totally useless week of soul destroying and mental health crushing tests.
What do they do to benefit my child ? Nothing it’s an evaluation of the school and the teaching staff. Ok it tracks his progress from year 3-6 but how does that help him ?
Secondary schools rarely use the information for the child as they prefer to carry out their own evaluations.
so why! Why put our 11 year olds through a nonsense test, how about put the teachers through the test make sure they know what they are teaching and evaluation done ta da!
For my Lenny and thousands of other children with mental health issues this week will be hell on earth !
Big try your best but remember your best is enough. Wether you pass or fail it’s not a reflection of you and the amazing kid you are

19/04/2024

….

26/03/2024

For all the purple warriors in the world!
Small has epilepsy and thankfully at the moment it’s just absent seizures but they are getting more frequent and Great Ormond street say they will most likely get progressively worse as she gets older.
Support, research, medical intervention, knowledge and love for all the purple warriors 💜💜💜

10/01/2024

23/12/2023

Had an amazing time at my work Christmas Day/ night yesterday.
A fabulous day out in London with the most amazing people followed by a festive meal and a cheeky Christmas cosmo 🍸 and an overnight stay in a hotel ……..
Well to tell the truth… as Mandy Lou’s is my part time project my full time job is SEN mum so technically my kids can also be classed as colleagues yes?
So a day out to see Disney on ice followed by a beefeater festive menu and a night at my home towns finest premier inn 😂😂😂

27/10/2023

So half term descended and landed with a bump, the kids have attended every day of school ( apart from the sprained thumb incident with big)
Both smalls have been fabulous! Monday we chilled at home and baked brownies and homemade pizza and zombie cookies. Tuesday we went to Romford to visit bigs besties and mummies and went bowling where small won !! ( much to bigs disgust 😂😂😂) dinner at Frankie and bennys and back to Romfords finest hotel …. The Liberty bell premier inn 😂 mums hotel of choice when visiting her Romford buddies.
All settled down for a nice early night to get up for our epic London adventure!
starting with a train ride we travel to Westminster to go to shreks adventure, the sealife centre, the London eye and the London dungeons!!!
Both kids were awesome! One mini meltdown from small because she wanted a teddy that was £55.00! And mum said no but apart from that she walked, held hands and listened to most of mum’s instructions, Horray!! Train ride back to Romford and then the long drive home to Colchester they made it home by 9.30 and all slept like logs 🪵
Thursday up early to fat club for mum ( still in target I might add) and then off to Volvo to get the charger fixed in the car. Car fixed and off to tesco to stock up as the kids need 18 snacks and six meals a day during the holiday! And again the kids have been fabulous.
Friday big is off to work with dad and small is with mum, the plan was to go to lakeside for some retail therapy but mum has woken up with conjunctivitis and cant see properly 🙄🙄😷 so a day at home playing games and being looked after by small.
Mum is suspicious as the smalls have been impeccable so is expecting some epic chaos at the weekend or on Monday when they head to chessington world of adventures for the last day of half term, stay tuned I’m sure it’s just around the corner 😂😂

19/09/2023

Well this sums up my tiny fella perfectly 🥰

Take my hand and come with me,
I want to teach you about FASD
I need you to know, I want to explain,
I have a very different brain.
Sights, sounds, and thoughts collide.
What to do first? I can't decide.
Please understand I'm not to blame,
I just can't process things the same.
Take my hand and walk with me,
Let me show you about FASD
I try to behave, I want to be good,
But I sometimes forget to do as I should.
Walk with me and wear my shoes,
You'll see its not the way I'd choose.
I do know what I'm supposed to do,
But my brain is slow getting the message through.
Take my hand and talk with me,
I want to tell you about FASD.
I rarely think before I talk,
I often run when I should walk.
It's hard to get my school work done,
My thoughts are outside having fun.
I never know just where to start,
I think with my feelings and see with my heart.
Take my hand and stand by me,
I need you to know about FASD.
It's hard to explain but I want you to know,
I can't help letting my feelings show.
Sometimes I'm angry, jealous, or sad.
I feel overwhelmed, frustrated, and mad.
I can't concentrate and I lose all my stuff.
I try really hard but it's never enough.
Take my hand and learn with me,
We need to know more about FASD.
I worry a lot about getting things wrong,
Everything I do takes twice as long.
Everyday is exhausting for me...
Looking through the fog of FASD.
I'm often so misunderstood,
I would change in a heartbeat if I could.
Take my hand and listen to me,
I want to share a secret about FASD.
I want you to know there is more to me.
I'm not defined by it, you see.
I'm sensitive, kind and lots of fun.
I'm blamed for things I haven't done.
I'm the loyalist friend you'll ever know,
I just need a chance to let it show.
Take my hand and look at me,
Just forget about the FASD.
I have real feelings just like you.
The love in my heart is just as true.
I may have a brain that can never rest,
But please understand I'm trying my best.
I want you to know, I need you to see,
I'm more than the label, I am still me!!!!
Author Unknown