06/10/2026
Three years ago today, Ciara passed away.
She was the daughter of close family friends. We'd already decided to fundraise for Reverse Rett that spring, and had spoken to Ciara's family about it before she passed on 6 October. We kept going as planned that year, raising for Reverse Rett in her memory.
One of her favourite songs, from Frozen, has had a place in our playlist every Christmas since, and it always will.
Reverse Rett funds the research working toward real treatments for Rett syndrome — gene therapy trials are further along than they've ever been, with more now moving toward the clinic. In 2023, School Lane Lights raised £2,131.07 for them.
Ciara's dad Neil is training for a marathon next year, still raising money for Reverse Rett, still carrying this forward. Follow him on Instagram at for updates - his JustGiving link is on his profile.
Thinking of Ciara and her family today. 💛