14/03/2024
Anyone else out there who has, like me, a neuroimmune disorder, such as transverse myelitis, ADEM, NMOG, etc.?
Tara Duffy is a neurology student in her last at the University of New Hampshire, who has ADEM herself. She is studying mindfulness and quality of life in these disorder and needs help completing an electronic survey for her capstone research study, (and to help the rare neuroimmune community).
Due to the rarity of these disorders, there is little information and awareness available, and the vast majority of research is focused on the diagnosing and treatment of the acute stages only. The purpose of her study is to examine the relation between mindfulness and quality of life in individuals with rare neuroimmune disorders.
IRB # IRB-FY2024-136.
Her survey takes about 15 minutes to complete. Click this link to access the content information and the survey:
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