04/09/2026
💚 A little ask from me today 💚
👉 Please sign and share the petition:
https://petition.parliament.uk/petitions/760461
If you don’t have time to read the full post, I’d be incredibly grateful if you could at least take a moment to sign the petition. Every signature really does count. We have until 24th September, exactly 20 days to help these girls and anybody else living with FA.
Charlotte (aged 25) and her sister Liv (aged 28) are two incredible ladies from Bromsgrove. They are both living with Friedreich’s Ataxia, whilst also being mums to beautiful young children and sharing their journeys online. Watching the strength, honesty and courage they show as they navigate life with a progressive condition has been truly inspiring. They are doing everything they can to raise awareness and fight for access to treatment. 💚
There is currently a UK Government petition calling for NHS access to Omaveloxolone, a treatment for Friedreich’s Ataxia.
At the moment, the petition has a little over 34,000 signatures, but it needs 100,000 to be considered for debate in Parliament. Every signature really does count. (Petitions - UK Parliament)
If you have 2 minutes to spare, please click the link above, read the petition and, if you feel able to, add your signature.
And if you can, please share this post too. You never know who might see it and be able to help get those numbers closer to 100,000
Sending so much love and admiration to these two incredible sisters and their families. Your strength and determination are genuinely inspiring. 💚
Thank you to anyone who takes the time to sign or share. It really could make a difference 💚
https://petition.parliament.uk/petitions/760461