Action Cerebral Palsy

11/08/2026

03/08/2026

Are you the parent or carer of a child with who is being or has been educated at home or not at a school whether by choice or necessity? Action Cerebral Palsy would love to hear of your experiences to enhance our understanding of the support needed and the benefits and challenges of educating otherwise. This will help inform our response to the current Government Consultation on EOTAS. Please contact us at [email protected]

We are seeking views on improving support, quality and oversight for children and young people who are educated outside of school.

31/07/2026

Do you have or know a child with who is educated otherwise at home or in a setting which is not a registered school (EOTAS)? Please see the attached Government Consultation on EOTAS and have your say on what support is needed for children and families who are educated not at school by choice or from necessity. Consultation closes September 18th.

We're asking for views on how we support children who are educated outside a school or college.  We've launched a new consultation on Education Otherwise Than At School, known as EOTAS, as part of our wider plan to improve support

23/07/2026

The University of Sheffield is seeking adults with cerebral palsy, family members, and healthcare professionals for a new study.

Please share this post if you know of anyone who might like to help them test and discuss how digital tools, like smartphones and sensors, can track and improve mobility. Workshops are available both online and in person.

More information on how to contact the researchers on the poster.

21/07/2026

A space has become available for our day at Yorkshire Wildlife Park.

Saturday 1st August 2026 📆

1 space - this is one youngster AND 1 PA/carer/+1, i.e. 2 tickets in total 🎟️🎟️

14-25 years old | Cerebral Palsy/Neuro physical disability

Fully accessible. Changing Places facility at the park.

All under-18s and those requiring support must attend with a parent/carer/PA. This is not a respite service.

£25 deposit required to secure place - this is fully refundable and will be refunded to you upon show on the day.

Be quick if you want to snap up this space! ⏳ Full information/register: https://www.cpteensuk.org/events-1/yorkshire-wildlife-park

21/07/2026

As part of the National Year of Reading, Calibre Audio is running their popular Inclusive Voices Short Story Competition for the third consecutive year. The competition celebrates the power of empathy, encouraging people of all ages to share their stories that inspire understanding and connection.

This year's theme is "Empathy". Calibre Audio are inviting stories or poems of 550 words or fewer that explore life through someone else's eyes and experiences, fostering compassion, purpose, and shared understanding. Entries are open until 13 September 2026.

The competition is free to enter and open to everyone, with four age categories:

Under 11
12–17
18–25
26 and over

Full details of the competition, including how to enter, can be found on our website: https://www.calibreaudio.org.uk/news/inclusive-voices.

17/07/2026

Are you navigating Education Otherwise Than At School (EOTAS) or Alternative Provision for a child with Cerebral Palsy? We want to hear from you!

We are hosting a virtual session to discuss:
- Barriers to accessing support
- What the system is missing
- Your child's achievements

💬 Please help us shape better support. To participate or to arrange a direct conversation with us, email [email protected] to join.
📅 Attend one of the EOTAS Online Events that have been organised by the Department for Education - https://www.eventbrite.com/cc/eotas-online-events-4855916
👉 You may wish to have a direct say in the new Government SEND consultation:

Find and participate in consultations run by the Department for Education

16/07/2026

Next weekend, Steve is taking a massive leap of faith and doing a charity skydive with Skyline Events to support our cause! Steve, your support is absolutely incredible, and we are so grateful. We hope those pre-jump nerves are holding up! 💪👉

If you would like to read his story and support his brave jump, you can donate to his page below.

All the best, Steve — and thank you!

Iʼm raising money to Action Cerebral Palsy. Support this JustGiving Crowdfunding Page.

15/07/2026

University of Leeds is conducting an NHS approved research study for young people aged 12-21 with hemiplegic cerebral palsy.

The study includes free hand dexterity testing, simple hand and arm activities, flexible appointments and covered travel costs. Participants may also attend an orientation session and bring a family member or friend.

Interested families can contact the research team directly.

Please see the poster for more information about this research study. Action Cerebral Palsy is sharing this project for awareness but is not involved in the research study.

13/07/2026

Sarah Davies, a nursing lecturer and School Lead for Engagement with People with Lived Experience at Birmingham City University, is writing a book promoting person-centred nursing care and would be interested to speak with and hear from individuals about their experiences of living with cerebral palsy, accessing healthcare, supporting a family member, or providing care. Initially, this would involve completing a short written narrative (where possible) about your experiences. Depending on your preferences, Sarah is happy to arrange a conversation or meeting to explore your experiences in greater depth.

Please be assured that contributors can remain anonymous within the publication if they prefer, and all contributions will be handled sensitively, respectfully, and confidentially.

By sharing your experiences, you would be helping to shape the education of future nurses and healthcare professionals, ensuring that lived experience remains at the heart of learning and practice.

If you would like to contribute, please contact Sarah by email: [email protected]