Colitis: My Story & Information

Colitis: My Story & Information

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Information through the story of a woman diagnosed, going through all treatments and surgeries while trying to have a happy life.

10/01/2019

Can I please go p**p without inducing so much pain i nearly pass out or get sick?

08/28/2019

It's been awhile since I've posted and that's cause for the most part I've been doing pretty well. But I got sick last week and my body has disided to go very up and down.
Having a J Pouch has made it way too easy to go from constipation to diahria way too easily.
This has resulted in so much pain, crying, nearly puking, and ripping my fissure open more.
Cant wait to get back on track.

08/03/2018

How an ostomy is made.

07/30/2018

My after surgery tummy. Still swollen and sore but that star scab is where my stoma used to be. If you look closely you can see a whiter circle around the star. That's where my bag used to sit on me. Looks like I need a bit more sun to even this out or it's just from the 2+ years I've had that covered. I'm kinda excited to see the star scar and work out.
Presurgery I had abs, cant want to get back to that.

07/27/2018

So an update...
Surgery went textbook on Friday. I was given meds before hand to make me drowsy and BOY did I get high for 2 hours before surgery LOL.
Recovery was also AMAZING and quick, almost no reactions with amazing staff that actually watched me. And within 2 hours of waking up I was already walking hospital halls.
I went for 3 walks that night and 3 the next day. I didn't p**p the next day and that got me worried and the pain was worse. But by saturday evening I was p**ping for the first time in almost 3 years!!! I was so excited... until it didn't stop and it hasn't stopped since. 16 to 20 full pain diahria s**ts a day, mainly evening and nights with no relief.
My ass is on fire and in so much pain I cry and shake and punch walls. I've developed hemroids and my fissures still hate me.
I should have a follow up in 2 weeks and I hope by then I can trust myself to leave my apartment.
I can honestly say I see why people with this surgery dont want to eat.
But... I'm stoma free

07/22/2018

It happened!
5 surgeries and almost 3 years later I took a s**t out my ass!
Still recovering. Hopefully on solids tomorrow.
Look at that proud girl face!!!

07/17/2018

Today was hopefully the last time I needed to change my ostomy bag.

I can't wait to wake up from surgery, look down and not see a stoma bag.

07/13/2018

After 115 pound weight loss my t**s look pretty sad.
But today I can happily report OHIP will be paying to fix them and make them look happy again.

06/26/2018

I haven't updated in awhile because my life and health have been so bad I was waiting for good news to share.
Yesterday I got it, i was finally approved for the second part of my surgery with no date in site.
Because of that I can't start my next semester of school on July 9th to which I found out my biggest influence for school and my future, my 3d modeling teacher is leaving next semester.
I'm so devistated I wont be able to take his classes. I'm thinking of taking his other classes at other schools once I'm better but for now I'm crying I'm so heart broken.

05/10/2018

Honest Update:
I believe my surgery has resulted in ulsers to form around my re**um. This can easily happen to people with auto immune issues.
As a result I'm in a lot of pain but to make matters worse I've stopped responding to morphine. I've switched to cosine in the mean time with a higher dose and higher frequency.
I'm still determined to get better.
ON A POSITIVE NOTE my ear pressure pain is gone. Which means my blood pressure is improving. I've done this by eating chips everyday and either chef BoyRdee or Mr. Noodles because of the high salt that my doctor told me I needed more of.
I've also gained a total of 3 pounds back going from 124 to 127. The differences I've made are eating 6 (small) meals a day. And by small I mean half a can or a third of Chef BoyRdee and continue eating it all day.
I still cook dinner and I don't nap. I take it easy and try and keep pressure off by butt so I don't sit a lot.
So the bright side is my overall body is recovering nice and that means I can fight harder to what's wrong with my butt.
Thanks for the ongoing support and here's a picture of my baby who never leaves my side no matter where I am or what I'm doing.

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