04/29/2026
Awareness matters - most people with primary immunodeficiency remain undiagnosed or are diagnosed late. But, with improved awareness and early treatment, many live full, long lives.
Provides patient support, education and research for a cure into Primary Immunodeficiency Individuals die due to misdiagnoses and delayed treatment.
Early diagnosis and treatment are essential to prevent life threatening complications. The good news is that early diagnosis and treatment can help provide a cure and allow a normal life. Ethan, born in April 2005 with no T-cells, was successfully treated with a bone marrow transplant. Many other PI patients are treated with antibiotics, antifungals and antivirals to fight infections, or with repl
04/29/2026
Awareness matters - most people with primary immunodeficiency remain undiagnosed or are diagnosed late. But, with improved awareness and early treatment, many live full, long lives.
In this final installment, we are reminded that early diagnosis and timely care can shape better outcomes, encouraging us to keep moving forward together as a community.
04/28/2026
Early, targeted treatment can positively shape the course of Primary Immunodeficiency over time.
04/27/2026
People with primary immunodeficiency need lifelong follow‑up, and a well‑supported transition from pediatric to adult care is essential for continuity.
04/25/2026
There are more than 550 forms of primary immunodeficiency. Early recognition and timely referral to an immunology specialist is essential for optimal care. Download the healthcare provider "Red Flags for Primary Immunodeficiency" checklist here:
https://immunodeficiency.ca/primary-immunodeficiency/red-flags/
There is an urgent need for earlier diagnosis and better support for people living with primary immunodeficiencies. Together, we can amplify the voices of our global community.
You can watch the full version at: https://youtu.be/usWZzNt1LXc?si=9sGmm8oPcmXLE6er
04/24/2026
Newborn Screening for the most profound form of primary immunodeficiency, severe combined Immunodeficiency (SCID), is life saving.
04/23/2026
The World PI Week 2026 Before and After stories reminds us what we can truly accomplish as a united community. See how the European Society for Immunodeficiencies (ESID) created a unified digital registry with data from over 30,000 patients—supporting faster diagnoses and more precise treatments.
As we kick into full-swing with World PI Week, we’re bringing you one of our inspiring Before & After Stories – a testament to the power of awareness, action, and collective support across the Primary Immunodeficiency community.
🌟In this story, you’ll find out how the European Society for Immunodeficiencies (ESID) built a unified, digital registry with data from over 30,000 patients, and how it’s helping clinicians to achieve faster diagnoses and deliver precision treatments.
Each story in this series shows what happens when barriers are removed, voices are heard, and people receive the diagnosis, treatment, or recognition they’ve long deserved. This transformation is at the heart of our 2026 theme, We Can’t Wait.
Head to our website to read all three stories 💙
worldpiweek.org/2026-before-after-stories
04/23/2026
A diagnosis of Primary Immunodeficiency within 10 years of symptom onset leads to significantly better health outcomes.
This mini film tells a big story, highlighting the experiences of people living with primary immunodeficiencies. Catch Part 1 here!
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