Ausomenest

Ausomenest A mother's experience; daughter with autism; difficulties with communication & sensory processing.

"Coach me and I will learn; Challenge me and I will grow; Believe in me and I will win," R.H.

24/08/2026

PECS to support the learning process. Last night as I was putting elyza to bed, I casually told her "today is Sunday, tomorrow will be?" And after a bit of processing time, she answered "Monday". Not in a song, not sang, not hummed, not drawn, not signed, not using PECS, ... but simply her orally answering my question.
Last year in SFO mornings, het support teacher used visuals to teach her this, and it was in her morning routine to cover today is ... tomorrow will be ... I tried to do it over the holidays, but it did not quite work as i wanted ... and then yesterday for the very first time - without any visual support, she said it !! Elyza interacted with me in a casual conversation, out of her routine, different context to when she would have used it, without support...

22/08/2026

Elyza added some more to her big sister duties for morning drop off. It is not just carrying her baby sister's bag, opening the door to the classroom area, and placing baby's bag on the trolley. It is also taking off baby sister's shoes and jacket off. First time she did it, it was spontaneously on her part without me askign her or directing her to do so ... she naturally went to her baby sister and removed her baby sister's shoes then helped her baby sister to take her jaxket off.

13/08/2026

Big sister happy to be back on the morning big sister duties dropping baby sister at school, leading the way to class, carrying baby sister's bag, accompanying baby sister to school ...

Elyza resuming school for a new academic year has always got me super anxious. This year, for some reasons, it was a dif...
12/08/2026

Elyza resuming school for a new academic year has always got me super anxious. This year, for some reasons, it was a different stress ... one that paralysed me, brain fog, knotted stomach, ... and it took me a good hour to calm down, ... funny thing is that this year I was aware of it all happening to me, as if I was observing myself from outside of my body, analysing and highlighting what was happening to me, shaking myself and trying to snap myself out of it ... all of it the before, the during and the after, even after that hour I mentioned it took me to calm down ... I would say the whole day until the kids been to bed ... I was 'dans un etat second' ... in a daze ... a trance ... spaced out ... weird feeling ... and with the kids to bed this weight, this foggy feeling just went away ... the whole day I was there but not really there ... luckily I have good friends and colleagues who are of great support ... and this I am the most for.
The day went by really well, started really well, and ended with no major issues ... I did not choose to stress out, it just was, but with my feeling towards the whole situation this time, I tell myself I am moving in the right positive direction ... I guess the unconscious stressing out for my big girl will always be there ... but at different degrees ... I just need to learn to auto regulate myself as need be to the best of my capability...

When you leaveyour phone with your daughter.who is with autism and lives editing images, you get the picture of her baby...
09/08/2026

When you leaveyour phone with your daughter.who is with autism and lives editing images, you get the picture of her baby sister edited to match the current holidays status!!
It cracked me up as I open Google fotos and I see this edited picture edited by the one and only Elyza :D
I went to her in her bedroom, showed her the edited picture, told her "good job! High five!" She gave me the high five then swiped the screen to rhe original picture back and forth original to edited, smiled and said "very good". She seemed so of herself and her work, so am I
And good sense of humour, and good creativity going on there :)

Tomorrow am resuming work after 1.5 month school holidays with the girls. I love my 2 monsters to bits, and we had some ...
05/08/2026

Tomorrow am resuming work after 1.5 month school holidays with the girls. I love my 2 monsters to bits, and we had some super wonderful and memoriable times together over the holidays. But like my mum just told me: "For you, going back to work, that's the holidays!" Indeed she is right, after a full 1.5 month school holidays with the girls 24/7, I need some holidays!
Am not saying this in a totally bad way, but to be able to sit down and enjoy some moment of quiet without my toddler and/or my daughter with ASD, both together or one at a time taking turn, not allowing me breathing and respite time, constantly needing me for something, or the constant requests mommy this mommy that, or the perpetual no silence from the babbling to high pitch cries, or the constant need to be on the lookout and prepared anticipating possible issues, or this feeling of whats next or what was I doing that I wasn't able to complete and need to complete now, amongst so many others ...
However, in all this madness, I have to acknowledge and express my gratitude for what I have. I am grateful and I tell myself that things could have been worst. It is difficult to be on me.own with the both of them, but I enjoyed the madness.of the past 1.5 months. It aint the holidays I am used to or fond of, but it has been a holiday full of hugs and kisses, smiles to giggles to laughters to ceazy laughs, amazement seeing the development of me girls - seeing them evolve and overcome challenges getting ready to be more and more independent and ready to face the ups and downs of life, discovering with the girls while re visiting my DIY craft skills, re accustoming to the art of cooking and baking, trying new food flavours and re visiting some long lost ones, meeting wonderful people, discovering Nature's beauty, sharing the love for animals that my daughter's both have, enjoying walks in the sun picking up flowers, sitting on the grass feeling the breeze on my skin while watching my 2 amazing daughters play together, ...

31/07/2026

Over the holz, we continued the excellent work done at school on life skills for Elyza. A challenge that involves fine motor, oral-motor, and sensory processing differences is that of eating on her own.
Muscle tone challenges with weak hand muscles making it hard to grip utensils and guide food accurately. The planning movements (motor planning) where it is hard for her to sequence the multiple steps of scooping food, lifting it at the correct angle, ... The oral-motor control as she faces the difficulty moving the tongue, lips, and jaw efficiently to chew and manage different food textures, opening the mouth at the right time, aiming the food to the mouth, putting the food in her mouth, taking in the right amount of food to be able to chew, accepting textures in her mouth, chewing properly, swallowing the food, ...
And today Elyza is able to eat independently. It is to be noted it remains challenging and tiring for her. She would gladly put the food away and stop eating waiting to be fed, or pick up the food with her fingers instead of using the spoon or fork. The mess still exists, and we (including herself) try to control the amount of mess done as the mess triggers her (the visual clutter, the feeling of different textures on her skin, the smell of different food items, ... ) ... all sensory processing challenges at small doses until the cup of tolerance is full and it explodes to a meltdown ... so over and above, well done Elyza, we are very of you overcoming your daily ! An to celebrate.
An to highlight for those who do not understand how much it is an achievement to be able to eat independently for Elyza who is with . In what society deems a normal casual thing to do as we sit down and eat, for a individual, there are many challenges that are to be overcome to complete this (what most would see as mundane task. from the muscle tone, to hand-eye-mouth, to the difficulties in remaining seated, food texture, food smell, visual clutrers, cutlery sound, food tastes, ...

Always good for others to know about the sunflower program so those who need it can benefit from it, n others to be able...
26/07/2026

Always good for others to know about the sunflower program so those who need it can benefit from it, n others to be able to provide support to those who carry the sunflower lanyard/card. We use the lanyard, and it has proven very helpful especially at airports.

18/07/2026

Elyza's baby sister seems to understand that elyza is special ... always taking take of her big sister. Or it is also her mirroring my behaviour towards Elyza ...
Baby sister would always be checking where Elyza is. Needing to know that Elyza is around and is OK.
- If Elyza goes too far she starts shouting "Elyza? Elyza!"
- If we are only baby and I, and Elyza is not with us she will call for Elyza.
- If I bring her to the toilet to wash her for a bath or change nappy, she will call Elyza to come.
- If Elyza falls down she will rush to her big sister
- If Elyza is sitting on her own, she will come check on her.
Baby is always caring for her big sister: Last time, Elyana was in my arms and she suddenly started to panic looking around and started to call out "Elyza!?", and when she saw that Elyza was sitting on the floor at my feet where she could not see her, an expression of relief could be seen on her face, followed by a huge smile :)
Baby is always making sure Elyza is OK: Last time Elyza was sitting on her floor, and baby went to her to check if she is ok bending forward to look at Elyza’s face faving the ground, then she sat down next to her big sister. Doing nothing, just sitting with her big sister. Almost as if she understood that Elyza just need time out, and maybe only needed her baby sister to just be there quietly sitting with her to show her support. :)

Sensory overload. I never realised how loud noise, crowds sitting and walking around, people chatting at varying tones, ...
16/07/2026

Sensory overload. I never realised how loud noise, crowds sitting and walking around, people chatting at varying tones, white noise that is random with volume going up and down, visual clutters, smells of food at a buffet, beeping in the kitchen, phone ringing somewhere in the crowd, cutlery clinking, changing weather, fading lights, etc ... with messages coming in on my phone and me having to sort out some money issues via my phone while feeding baby and making sure elyza is eating and feeding her from time to time, ... on top of me having my hormones all over the place manifesting through migraines, pimples, grey hair and body aches ... all together could be so overwhelming!! or is it because I am so tuned with Elyza’s autism that I am being overly aware of my surroundings?
Today I had a glimpse of what possibly could be Elyza’s every day in such instances ... my body was limit shaking, I was limit stimming, I felt so out of place, I had this feeling or being lost, confused, not sure how to act and react ... now I FULLY understand the use of the noise cancelling headphones and fidget toys!!
It sounds like I had an illuminating experience. That "glimpse" into my daughter's daily life with was powerful. Maybe it was a combination of both me being ​"overly aware" and experiencing the same sensory landscape as Elyza. As a primary caregiver for an autistic child, it seems like my brain is now wired to be hyper-vigilant while my own nervous system is reacting to the same environmental stressors she experiences.
It seems like I have experienced a storm of "sensory stacking." Each individual sound (cutlery, beeping, chatter) or visual stimulus might have be manageable on its own, but when they stacked up, they crossed the threshold from "annoying" to "physically painful/debilitating." Also, I was not just managing the environment; I was managing the cognitive load of multitasking (feeding, finances, parenting). This used up the "battery" that would otherwise have helped me regulate my sensory input. Plus biological speaking I am going through some hormones imbalance with migraines, and physical exhaustion. So in a way I was fighting a battle on two fronts: the external environment and my internal physical state. And of course because I am so deeply tuned into Elyza, I somehow experienced a form of "parallel processing" whereby I am running an empathy simulation of her world, which kept my own nervous system on high alert.
My physical symptoms—the shaking, the feeling of being lost / confused, and the urge to stim—are classic indicators of a nervous system burnout or a near-meltdown state. I know that it is not that I am "over-reacting"; it is that my body was signaling that it had reached its maximum capacity for input. Considering this, in my journey as a parent of a child with ASD, it indeed has transformed the sensory processing tools such as the noise-canceling headphones and the fidget toy from mere "gadgets" to support Elyza ASD into essential safety equipment. They are not just for comfort; they are regulatory tools that protect the nervous system from becoming overtaxed.
​I have now shared a language with Elyza. When I see her struggling, I would be better suited to not see just a "behavior" but to see the environment that is pushing her to that point, and act upon it.

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