Elisha our Superstar

Elisha our Superstar

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This page is about our son Elisha’s genetic condition-Prader Willi Syndrome. Join us on his journey, help us raise awareness and celebrate his achievements

Click here and donate to Prader-Willi Research Foundation of Australia for Team Elisha 02/06/2024

We raised over $1600 for PWS research and I am so grateful to all our donors. Thank you 🙏 you can find Team Elisha in the champion list. Let’s hope together we can make a difference and impact the lives of everyone living with this condition. ❤️

Click here and donate to Prader-Willi Research Foundation of Australia for Team Elisha We are dedicated to improving clinical outcomes and delivering better treatments for people living with Prader-Willi Syndrome We do this by funding cutting

29/05/2024

Officially orange day is May 31st!

The month of May is here! That means global awareness for and especially on Friday 31st May, so start thinking about how you will celebrate day and post on all your socials (and ours if you can).

04/03/2024

📸 Say cheese 📸

Our Sunday Sports Club had an awesome time this weekend developing their sport skills and getting to know each other better ⚽️🏀☀️

The smile on these two faces says it all 💜💜

07/12/2023

Elisha got to take home a huge box of Lego that they were giving out in the Starlight room at the hospital when leaving and some small ones as gifts for his brothers! He was very excited to go home, when he says “Door Me” it means I’m going home ❤️

07/12/2023

Update * Elisha is doing much better! And we have gone home in time to spend Chanukah with the rest of the family!

While we were waiting to be discharged, we visited the Starlight room in the hospital ( an amazing room designed to entertain kids that are unwell) Elisha went straight to the coffe machine as he loves making coffee!

He ended up making coffee for all
The staff working there who gave him their coffee ☕️ orders 😂

He has been sent home with a plan to follow and hopefully will be back to himself next week!

Thank you for all the lovely msgs we received, it made him so happy ❤️🙏

Wishing you all a Happy Chanukah 🕎

Photos from Elisha our Superstar's post 05/12/2023

We are still here.. Thank you beautiful Chaya Gopin with our cutest visitor Kovi for dropping snacks and games to Elisha ❤️ so grateful ☺️ looks like we might be out of here later today 🙏🙏🙏

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Sydney, NSW