11/02/2026
Ahead of our event today with Prof Mitch Weiss, of St Jude Children's Research Hospital, on research directions in sickle cell disease (SCD) and thalassaemia, check out today's news on SCD being added to the newborn bloodspot screening program.
Australian Sickle Cell Advocacy founder Agnes Nsofwa says her daughter Mapalo's life would have been vastly different had newborn screening existed 17 years ago.
“She grew up in the hospital,” Agnes told Sarah Booth of the Herald Sun. "I’m very excited to see that other kids won’t go through what we went through.”
Prof Andrew Perkin of the Australian Centre for Blood Diseases will host today's event at the Alfred Innovation and Education Hub, 75 Commercial Road, from 2:00-3:00pm. details: https://www.monash.edu/medicine/news/events/2026/public-seminar-sickle-cell-disease-and-thalassaemia,-with-visiting-us-professor-mitch-weiss
https://www.heraldsun.com.au/news/victoria/every-victorian-newborn-can-now-get-screened-for-this-condition/news-story/7670fdccc0b6b3f56dfe4274e5473a2a?btr=14b78ec30906e4553534e9ba4e4d9f7a
The ‘heel prick’ test offered to Victorian babies will now screen for another rare, but serious condition, paving the way for life-changing, early diagnoses.