Endometriosis Support Group Darwin Australia

Endo Darwin Warriors Supporting Each Other. So I thought we could help each other. What is Endometriosis? Many women think that painful periods are normal.

Welcome to the Endometriosis Support group for people living with and those supporting us through this disease. 1 in 9 women suffer with Endometriosis and yet there is little being done to raise awareness or assist with the strain that living in constant pain is putting on our lives. Chances are if you have found us then you already know what endometriosis is however for some of us when we are dia

gnosed the condition is never really fully explained. For me I had been referred for scans, MRI's, blood test and was not diagnosed with anything. I was until a marvelous Darwin chiropractor suggested that I may be suffering from this disease that I was finally informed enough to fight for a referral. In its simplest terms endometriosis is a condition in which endometrium, the tissue that normally lines the womb (uterus), grows in locations outside the uterus. Endometriosis may cause adhesions (fibrous scar tissue) on the uterus. The uterus can become stuck to the ovaries, fallopian tubes and bowel. The pain of endometriosis can be so bad that it stops you from going to work or school. Usually, it causes pain around the time of your period but for some women the pain is almost constant. If you need treatment, you may need emotional as well as physical support. Symptoms
The symptoms of endometriosis include:
Painful periods
Pain with sex
Pelvic pain
Ovulation pain
Pain in the lower back and thighs
Bowel symptoms
Bladder symptoms
Reduced fertility
Nausea and lethargy
Pre-menstrual tension (PMT). If you have bad period pain, you should see your doctor. Diagnosis
Tests that are used to help diagnose endometriosis include:

Laparoscopy – surgical procedure performed under general anaesthetic, where a medical instrument with a video camera attached is used to examine your pelvic organs. Ultrasound – a vaginal or abdominal instrument that uses sound waves to create a video image of your pelvic organs. Colonoscopy – a medical instrument with a video camera attached that is used to examine your bowel. This is done if it is thought that the endometriosis could also be affecting your bowel. You would be sedated for the procedure. Endometriosis may not show up during an internal pelvic examination. Your doctor may need to refer you to a gynaecologist if you have endometriosis. Treatment
Endometriosis can be treated medically (with drugs or medicine) or with surgery. Sometimes both medicine and surgery are used. Some women also benefit from natural therapies. Drug therapy
Medications that are used to help treat endometriosis include:

Anti-inflammatory medications

Pain killers (Mersyndol is often used)

Hormonal treatments, which suppress ovulation and menstruation and may have side effects. There are different categories of these such as GnRH agonists (Zoladex, Synarel), androgenic steroids (Danocrine, Azol, Dimetriose), progestogens (Provera, Duphaston, Primolut) and the oral contraceptive pill. Surgery
Surgical methods used to treat endometriosis include:

Laparoscopic surgery – performed to diagnose and treat endometriosis. Laser surgery may be used to remove the adhesions. This is done to reduce pain and improve the chances of you becoming pregnant. Laparotomy – to cut out or burn tissue or remove cysts. Bowel resection – may be necessary if the bowel has developed endometriosis adhesions. Hysterectomy (removal of the uterus) – may be an option if endometriosis is significantly impacting on your quality of life and other treatments have not worked. If your ovaries are removed during a hysterectomy, you will need to discuss hormone replacement with your doctor. Complementary therapies
There are many different forms of complementary therapies that can be used to treat endometriosis. Most therapies may be used in conjunction with Western medicine or instead of surgery and drug therapy. Examples of different therapies include:
Herbal medicine
Homeopathy
Traditional Chinese medicine
Nutritional therapies
Massage
Yoga.

08/05/2024

Always got to support one another, bringing awareness to the remoteness of the NT.

“It made me feel terrible and unheard, like I was going crazy. It’s worse due to the fact that I live remotely, so endometriosis isn’t as widely known about here and options for help are limited.”

👉🏻 To read Kate’s story, click here:
https://endometriosisaustralia.org/endo-in-the-alice/

08/05/2024

Wow what a positive outcome! Hopefully other states and territories can follow suit 🤞💛

11/04/2024

Who does everyone recommend in Darwin to help manage their Endo - I.e., Dieticians, GPs, Psychologists, Holistic Practitioners, etc.
Time to update the Endo Directory :)

11/04/2024

Another step forward how amazing. Need more progression in the NT though.

Photos from The Administrator of the Northern Territory's post

05/03/2024

One step forward for women living with endometriosis in the Darwin community.

15/11/2023

Congratulations Libby Trainor Parker!
We certainly need more Libby's in the world advocating and spreading the message about Endometriosis.

I must say, I was a bit taken aback when I received the nomination for this award, and I nearly wet my pants when I was announced as a finalist.

It is such an honour, but the best bit was meeting the impressive finalists at the photoshoot we did. It felt so good to be in a room with that much talent, smarts and kindness. My heart was full and I was swollen with pride to be part of a community of people doing good things in the world.

The ceremony is tonight and I can’t wait to see everyone and celebrate each other.

Photos from Good Dog . Animal Assisted . Therapy Dog Services's post

09/11/2022

What a warrior, we were so honoured to have had Roxy as our EndoMarch ambassador in 2021 and 2022.
Our thoughts are with Roxy's family at this time as she was so much more than four-paws and a tail 🐾
Roxy has helped and supported people throughout the Darwin community including our very own EndoWarriors 💛

11/06/2022

Thoughts? Would love to hear them.

Should Australia introduce menstrual leave? Yes, but we need other period-friendly policies as well.

Menstrual leave has been in the news recently, The Conversation looks into what is happening around the world in this space and what is happening in Australia.

https://theconversation.com/should-australia-introduce-menstrual-leave-yes-but-we-need-other-period-friendly-policies-as-well-184146

Don't forget to take the time to participate in our Endo@Work Research Project to help inform workplace policy for those living with endometriosis.

11/06/2022

Together we can give hope to Australians living with Endometriosis.

1 in 9 Australian women and those assigned female at birth have endometriosis. As many of us know, this can involve debilitating pain and the haunting prospect of infertility.

Endometriosis Australia raises much needed research funding and public awareness and education.

By supporting Endometriosis Australia, you are giving relief to Endo Warriors now and into the future.

Please consider making a tax-deductible donation today.

https://endo-aus-2022-tax-appeal.raisely.com

28/05/2022

If you also have been diagnosed with Endometriosis, when was Adenomyosis brought up to you as a possibility? Was it after it was found or suspected due to imaging, presentation on exam or surgical finding? Was it due to uncontrolled symptoms? Was it after excision of Endometriosis?

Not only do the symptoms overlap with Endometriosis but they overlap with many other pelvic pain and gynecological conditions. Many patients have more than one of these conditions as well, adding to the challenge of treatment and diagnosis

It’s important to note the overlap in symptom presentation and that symptoms may be from both endometriosis AND adenomyosis. This needs to be acknowledged more so that patients are aware that Adenomyosis is a possibility regardless of age

The non-surgical options are similar as well: focusing on symptom management such as pain relief +/or bleeding with hormone therapies

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Endometriosis Support Group Darwin Australia

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