Monash Centre for Health Research and Implementation - MCHRI

Lorna Berry from Polyendocrine Ovarian Syndrome Association of Australia (POSAA) played a key role in the PMOS name change—backed by 14 years of global advocacy, research, and collaboration.

The name change was driven by lived experience—with women, and led by women, for the 170+ million women affected, and for a future of better diagnosis and care.

Learn more with our PMOS resources, created with women like Lorna, shaped by lived experience, and translated into multiple languages - 🔗bit.ly/4v2LsSl

PCOS to PMOS - Learn why the condition has been renamed, how it was changed and what's next? If you have PMOS and you missed our webinar, it's available to watch. Polycystic O***y Syndrome Association of Australia (posaa) Inc

Community webinar for women with PMOS on what, why and what's next in the new name Free community webinar with Prof Helena Teede, Lorna Berry, Dr Mahn...

"That the name has changed from PCOS to PMOS happened at all is a testament to patient advocacy over decades. Without that, the science and will of clinicians alone would not have been enough to move this. And it is that same equal partnership between patients and clinicians that is now driving implementation."

🎉Congratulations to Rachel Morman from Verity - PMOS UK whose Opinion piece is published in The BMJ.⬇️

Rachel is the Patient Lead on the International Name Change Steering Committee, and a committed and dedicated advocate for years.

🌟Congrats Rachel on this fantastic achievement!

PMOS: What's in a name? Everything. The renaming of polycystic o***y syndrome will help kickstart research into a condition that has long been misunderstood, says Rachel Morman First, do no harm. It is medicine's most foundational principle. Yet for decades, a four letter acronym has been quietly violating it-not through malice, but m...

Just over two weeks ago Prof Helena Teede, Rachel Morman, Prof Terhi Piltonen, and Prof Aled Rees announced the new name for PCOS: Polyendocrine Metabolic Ovarian Syndrome (PMOS) at ECE in Prague (➡️PMOS resources 🔗bit.ly/3V85nPJ)

The research was published in:
✅ The Lancet: bit.ly/4uHFpSK
✅ Nature Medicine: bit.ly/4o2aL4w

And the global impact has been absolutely incredible and is continuing. 🌍✨

The announcement generated:
✅ 6,000+ media stories
✅ Reaching over 600 million people worldwide

Major outlets like BBC, CNN, ABC News, Teen Vogue, The New York Times, TIME, USA TODAY, and India Today have all featured the story.

One of our favourites👇
The Guardian Australia (video + articles): https://bit.ly/4fSg1FG

The conversation went viral across social media, which is helping raise awareness, far and wide.

We even made it to Bluey… and yes, they made a meme! 🐾

🙏 A huge thank you to everyone who has shared, continues to share and supported this important change.

This extraordinary global attention is helping drive better understanding, improved care, and ultimately better outcomes for women.
Verity - PMOS UK

This week in InSight+

A global effort led by Monash University has successfully changed the name of Polycystic O***y Syndrome to Polyendocrine Metabolic Ovarian Syndrome.

Read more: https://buff.ly/9x6KzmP

🛑 Please help us with our research as we develop a tool for predicting Early Menopause (EM) / Premature Ovarian Insufficiency (POI)

✅POI is when your ovaries stop working before age 40 years, and EM is when menopause happens between ages 40-44 years.

✅POI and EM affect up to 16% of women, with impacts on fertility and physical and psychological health.

Despite identified risk factors, there is currently no reliable way to predict.

So, if you are a woman 18-45 take this short survey: https://bit.ly/4ac59Pl - all women can participate.
Pls share our post🙏

Don't miss our Q&A webinar to learn why PCOS changed to PMOS (Polyendocrine Metabolic Ovarian Syndrome) and what happens next.

Thursday 28 May, 5:15–6:00pm AEST

Register and submit your questions to the panel
🔗 bit.ly/4tPsdKT

Free Community Webinar – PMOS Name Change

PCOS has a new name: Polyendocrine Metabolic Ovarian Syndrome (PMOS).

Join us Thursday 28 May, 5:15–6:00pm AEST to hear from experts and community groups who led the change to learn:
✅Why the name has changed?
✅ What PMOS means for you?
✅ What happens next?

This change is the result of 14 years of advocacy, research and collaboration—with women, led by women, and for women.

🔗 Register bit.ly/4tPsdKT

Here is the plan for implementation. You can download it here. https://www.mchri.org.au/wp-content/uploads/2026/05/Implementation-Plan.pdf