Prostate Cancer in Gay and Bisexual Men and their Partners - Research Study

This research has received formal ethics approval from University of Western Sydney, ACON and Victoria AIDS Council (VAC).

The purpose of this study is to help us gain knowledge and understanding of how prostate cancer affects s*xual wellbeing and quality of life in gay and bis*xual men and their partners. Research Study: Sexual Wellbeing and Quality of Life after Prostate Cancer for Gay and Bis*xual Men and their Partners

It is estimated that 600 - 1000 Australian gay men are diagnosed with prostate cancer each yea

r. This study aims to examine the psychological burden of changes to s*xual wellbeing, s*xual identity and intimate relationships in gay and bis*xual men with prostate cancer and their male partners. Sexuality and intimacy are important aspects of an individual’s quality of life, with changes to s*xual functioning, relationships, and sense of self reported to be among the most negative influences on the wellbeing of men with prostate cancer. However, the focus of previous research has been heteros*xual men, with gay and bis*xual men with prostate cancer being described as an “invisible diversity”, or a “hidden population”. This has led to a plea for research on the impact of potentially important differences in s*xuality, identity, and intimate relationships on gay and bis*xual men’s experience of prostate cancer, which can be used to inform health education and health promotion, as well as lead to targeted psycho-social interventions. This project is funded by Prostate Cancer Foundation of Australia (PCFA) and is a collaboration between UWS and Australian and New Zealand Urogenital and Prostate Cancer Trials Group (ANZUP). Who can participate:

• Gay and/or bis*xual men, and/or men who have s*x with men, who have (or have had) prostate cancer
• Male partners of gay and/or bis*xual men, and/or men who have s*x with men who currently have prostate cancer

How to participate:

If you are willing to take part in this study, you will need to complete a survey, which may take about 30 minutes to complete. The survey has questions about the impact of prostate cancer, and your thoughts about s*xual practices, s*xual identity, intimate relationships and quality of life. You can access the survey online at http://www.uws.edu.au/PCAS (Person with Cancer Survey or Partner Survey). If you are only interested in participating in Stage 2 of this study which is the interview, please contact the team via the email below. A member of our research team will contact you shortly to arrange the interview with you. Contact details:
Telephone (freecall): 1800 19 20 02
Email: cancerands*[email protected]
More information: http://www.uws.edu.au/PCAS

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The Out with Cancer Study is still wanting to hear from those who have experienced cancer. The response has been great but there are still sections of our community that who seemed to be under represented.

So while we still need to hear from everyone, if you are bis*xual, transgender, non-binary, genderfluid living with cancer or providing support for someone with cancer please click on the link below.

Also, we would appreciate you sharing this post through your networks. TIA - thankyou in advance

Out With Cancer LGBTQI+ includes people who are le***an, gay, bis*xual, transgender, q***r, born with a variation in s*x characteristics (inters*x variation), and those who identify with other descriptor terms used in our communities.

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Low awareness can be lethal Alarming new research has revealed about 70 per cent of Australians don’t know the signs and symptoms of prostate cancer, prompting Prostate Cancer Foundation of Australia to call for greater public investment in targeted community awareness activities.

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Cancer Care Professionals

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Studies show that not all high-grade prostate cancers are the same. A recent study of Gleason grade 5 prostate cancers found that different patterns of gene expression made some cancers more aggressive than others. 🤔🧐

It's an important finding that may contribute to different treatments for subgroups of prostate cancers - enabling clinicians to intensify treatment for more deadly types of the disease. 💙👍

Read more in this week's blog > https://bit.ly/2zVhNVa!

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Hope for men with high-risk non-metastatic hormone resistant prostate cancer In one giant leap for advanced prostate cancer, the US Food and Drug Administration (FDA) has this week approved two new PARP inhibitors for the treatment of metastatic castrate resistant prostate cancers which have specific genetic mutations.

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29/03/2020

Hi everyone

With many of us now working from home or remaining at home due to COVID19 there is opportunity to complete the online survey for the Out With Cancer Study.

Some of the feedback from those completing this study has include some confusion with clicking on the link and seeing a button for interview and not the survey. If you click on the link and do not see the survey button it will appear as the banner scrolls.

Also, please ask your support people to complete the survey as well. It is the same link but support people (biological family, chosen family, friends, colleagues) just follow the carer pathway.

Any confusion please let us know.

https://www.westernsydney.edu.au/out-with-cancer.html

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