Jaiya for Neutropenia Awareness

Today isn’t just about a diploma—it’s about every sleepless night, every needle, every hospital visit, every moment it would’ve been easier to quit—but didn’t.

Graduating with a chronic illness means showing up when your body says no, pushing through pain, fatigue, and doubt. It means being resilient in a way most people will never fully understand.

This diploma represents strength, sacrifice, and the kind of determination you can’t teach.

To anyone fighting silent battles while chasing big dreams—this one’s for you.

🦓 👑

We are so proud of you Jaiya!! Self advocacy is so important in your journey and we are so glad you have understood that since you were very young! We love you ! 🦄 🦓

I am RARE! Severe Chronic Neutropenia- Autoimmune 🦄

ER Visits 101: Lesson for Today

Keep a positive attitude! Keep smiling!
🦄

ER visits 101: Lesson for Today

Take Daddy … he makes everything better. ❤️ 🦄

The Jaiya Evanni Foundation, Incorporated would like to take this time to say Happy Women’s Day to every Rare zebra woman around the world! 🦓🦓

Rare Disease Day 2022 is among us !! I love someone rare ! 🦄

Hi Team Jaiya! Join the movement!

In an effort of global solidarity, you are invited to light or decorate your home (a door, a window, etc. ) office, or car with the Rare Disease Day colours at 7 PM your local time on 28 February 2022.

We are asking our family, caregivers, healthcare professionals, friends, teachers, and followers to shine a beacon from your home, office or car.

By Sharing Your Colours and shining a beacon from your home, office or your town, you are participating in awareness-raising and showing your solidarity. Collectively, we aim to change and improve the life of Jaiya and 300 million people worldwide.

👈🏾 Check out the graphic and/or watch the video 👇🏾
https://youtu.be/tfqri6Dnaeg
for more details.

📌Take a picture and post it on social media .
📌Tag
📌Use the hashtags:
🦄

RDD 2022 🦄

RDD2022