Partnership To Improve Patient Care - PIPC

is LIVE! https://www.youtube.com/watch?v=d4yWBiDbOKE

For this year's forum we will be welcoming participants to discuss with us how to improve patient engagement in policy decisions as well as efforts to address how value assessments are developed and used in health decisions. We look forward to learning about the experiences of patients that have engaged with policymakers leading implementation of the IRA’s Medicare Drug Negotiation Program and state Prescription Drug Affordability Programs.

We also look forward to a lively discussion about the need for value assessment of health care to be centered on patients and people with disabilities with protections against their use to discriminate or promote health inequities. PIPC will engage in a conversation about the importance of policies that advance the collection of data and conduct of research centered on the needs of people with disabilities.

2023 PIPC Forum The Partnership to Improve Patient Care (PIPC) will air its 14th annual forum virtually on Monday, December 11 at 12pm ET.For , we will be welc...

Save the date! will be aired virtually on Monday, December 11 at 12 PM ET.

For , we will be welcoming participants to discuss with us how to improve patient engagement in policy decisions as well as efforts to address how value assessments are developed and used in health decisions. We look forward to learning about the experiences of patients that have engaged with policymakers leading implementation of the IRA’s Medicare Drug Negotiation Program and state Prescription Drug Affordability Programs.

RSVP today!

PIPC Forum 2023 The Partnership to Improve Patient Care (PIPC) will air its 14th annual forum virtually on Monday, December 11 at 12pm ET. For , we will be welcoming participants to discuss with us...

“It’s just shocking. I’m a little bit angry at the whole medical system, and why are we not funding this if it’s working?”

'An arm and a leg': Southland couple turn to fundraising to access melanoma drug A Southland couple should be enjoying newlyweded bliss but instead are fundraising to access a cancer drug that is unfunded in Aotearoa.

"While QALY plays a significant role in health-care decisions in the United States, it puts people with disabilities like Down syndrome, ALS and cystic fibrosis at a medical and economic disadvantage."

Perspective | The eugenic roots of ‘quality adjusted life years,’ and why they matter Why a powerful House Republican wants to ban a common insurance practice.

“We are concerned that ICER does not qualify the reliability of its base case value assessment and policy recommendations when entire subpopulations or outcomes are excluded from the data.”

Read more in our letter to the Institute for Clinical and Economic Review that outlines concerns about the health technology assessment and its implications for http://www.pipcpatients.org/resources/more-than-40-leading-organizations-join-pipc-comment-letter-on-icer-efforts-to-advance-health-equity

More than 40 Leading Organizations Join PIPC Comment Letters on Efforts to Advance Health Equity in Value Assessments About PIPC

More than 40 leading groups representing patients, people with disabilities, older adults, and communities of color joined PIPC in comment letters to Institute for Clinical and Economic Review and Innovation and Value Initiative on the need to promote in the health technology assessment.

More than 40 Leading Organizations Join PIPC Comment Letters on Efforts to Advance Health Equity in Value Assessments About PIPC

will be held on Tuesday, December 13 from 12-2 PM EST.

RSVP today for our important discussion in the need to promote in value assessment metrics like and the

PIPC Forum 2022 Please save the date to join the Partnership to Improve Patient Care (PIPC) for a discussion about the importance of inclusion in research and value assessment as health technology assessment...

We are pleased to join Global Liver Institute, National Minority Quality Forum, and The Preparedness and Equity Treatment Coalition in authoring a new report to assist ​organizations, health systems, payers, and policymakers that want to center their value assessment work on .

Aligning Health Technology Assessment with Efforts to Advance Health Equity About PIPC

Banning the use of the is a foundational step for disability rights and has long-standing bipartisan support. We look forward to bipartisan legislation being considered to extend the ’s Medicare ban on QALYs to all federal programs as recommended by the National Council on Disability!

Quality Adjust Life Years in Healthcare Disguise Bigotry If the government is in charge of paying for medical care, then public officials will need some way of determining whose life is worth saving and at what cost.

**COMPARE-UF** is a nationwide research study that followed 3,144 women with uterine fibroids over 3 years to see how well their treatments worked. Data collection ended in 2020 and important findings are emerging. https://compare-uf.org/

Join CARE About Fibroids, The Fibroid Foundation, and The White Dress Project: We CAN Wear White every Wednesday throughout Fibroid Awareness Month to learn more about this research and how it applies to you.