PKD Foundation - National Capital Community

Come hear Vice President of Research Programs, Chris Chen, Ph.D., for an informative virtual meeting about PKD research!

RSVP HERE: https://support.pkdcure.org/event/national-capital-community-meeting-04-21-26/e774234

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Last week, Chris Chen, Vice President of Research Programs, and Paul Scribner, Vice President of Community Programs and Education, attended the Kidney Disease Clinical Trialists (KDCT) Workshop. During sessions on novel clinical trial designs and gene therapy, they proudly presented the patient perspective—bringing valuable insights to nephrologists, regulators (FDA, EMA), and industry leaders. These conversations are helping shape the future of kidney disease research!

Upcoming Community Meeting!

Join the National Capital Community and the PKD Foundation's Vice President of Research Programs, Chris Chen, Ph.D., next month for an informative virtual meeting about PKD research. He'll provide an overview of the latest developments and share insights on the direction of future studies.

This is a great opportunity to learn about ongoing research initiatives, ask questions, and explore how these efforts are shaping the future of care and treatment for the PKD community.

Meeting Details
Tuesday, April 21
7:00 p.m. (ET)
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RSVP:

National Capital Community Meeting 04.21.26 Join the National Capital Community and the PKD Foundation's Vice President of Research Programs, Chris Chen, Ph.D., for an informative virtual meeting about PKD research. He'll provide an overview of the latest developments in PKD research and share insights on the direction of future studi...

PKD Research Update

Tuesday, April 21 7:00 - 8: 15 PM Eastern

Online event

Organized by the National Capital PKD Community, this webinar features the PKD Foundation's Vice President of Research Programs, Chris Chen Ph.D., for an overview of the latest developments and direction of future PKD studies. Learn about research initiatives, ask questions, and understand how these efforts are shaping the future of care and treatment for the PKD community.

To learn more and register to attend:

National Capital Community Meeting 04.21.26 Join the National Capital Community and the PKD Foundation's Vice President of Research Programs, Chris Chen, Ph.D., for an informative virtual meeting about PKD research. He'll provide an overview of the latest developments in PKD research and share insights on the direction of future studi...

A heartfelt thank you to everyone who supported and participated in the 2026 PKD Advocacy Days—both in person and virtually. Because of your passion, dedication, and voices, our message was heard. It was inspiring to stand together as a community and advocate for those affected by PKD. Your teamwork and commitment made this an incredible opportunity to connect with our legislators and move our mission forward. Together, we are making a difference. 💚💜

Thank you to all who attended and fundraised for the National Capitol Walk for PKD! While we’ve made great progress, we haven’t yet reached our goal of $37,000. With your help, we can get there.

Donations for the Walk for PKD are accepted through December 31, 2025, and this upcoming season of giving is the perfect time to reach your personal fundraising goal!

Here’s how you can help:
📲 Send a quick email or text to friends and family with your fundraising link.
💬 Share your story on social media and tell others why you walk.
🎁 Ask for donations in lieu of gifts this holiday season.
🤝 Match donations or check if your employer offers a match.

Every gift brings us closer to a future without PKD. Thank you for your continued support and generosity!

Share your fundraising page or donate to the National Capitol Walk for PKD today: https://support.pkdcure.org/event/national-capital-walk-for-pkd-2025/e690841

The National Kidney Registry Announces its Newest Microsite Center: UVA Health West Complex | Find A Kidney The National Kidney Registry (NKR) is pleased to announce that UVA Health West Complex in Charlottesville, Virginia, has joined the NKR’s Microsite Program as the newest participating center. Over 60 transplant centers nationwide are now part of the NKR’s effort to help patients find living kidn...

The Baltimore PKD Walk was a tremendous success! We surpassed our fundraising goal and had an incredible time coming together for a great cause.

More pictures from the National Capital Walk…145 warriors strong!

Excellent turnout for the National Capital PKD walk today! Delighted to interact with such a great group of warriors!