ABA with US

Me vs. Me.
I’ve reached a point where I want to do better — mentally, physically, emotionally, and spiritually. Not for anyone else, but for me.

Me vs. Me… and I’m showing up for myself.
❤️

When your child is hurting… there’s no pain like this. 💔
Watching your baby suffer through a pancreas attack, crying and curling up from pain — and you can’t do anything except wait for the medicine to finally kick in… that’s the kind of heartbreak only a mother understands.

You sit there holding their hand, praying the minutes go by faster, wishing you could take every bit of that pain into your own body instead.
It’s the waiting… the helplessness… the fear…
And somehow, you still show up with strength you didn’t know you had.

Being a mom to a medically complex child is carrying a pain nobody sees and a love that refuses to break.

❤️

Some days I struggle. Some days I cry.
Some days I’m just trying to hold all the pieces together so I don’t fall apart.

Being a mom to children with special needs is beautiful, but it’s not easy. It’s hospitals, appointments, sleepless nights, constant worry… and still showing up every single day with love. Going back and forth to the hospital drains you in ways people don’t always see. It’s tiring. It’s heavy. It’s a different kind of strength.

And on the days I feel like I can’t keep going, I remind myself of one thing:
everything I’ve survived… everything that was meant to break me… made me stronger instead.

I’m still standing.
I’m still fighting.
And I’m doing it all for my babies.

Alhumdulillah for the strength I didn’t know I had.

The only plan I have… is God’s plan.
I don’t have a plan B, because I know His plan is greater than anything I could ever create for myself. ✨

Life has taken me through storms I never expected — hospitals, sleepless nights, pain, and moments that broke me in ways I can’t explain. But even in the middle of all that, Allah has never left my side.

I trust Him fully.
I surrender fully.
Whatever is written for me and my children, I know it comes from the One who loves us more than anyone else ever could.

No plan B… just faith.
No backup… just trust.

Thank you so much, **Casey Cares Foundation**, for sending this thoughtful birthday gift for **Abdullaah** 🎁💙

He was so happy to open his special package and cozy up with the beautiful blanket. Little things like this mean so much to families like ours — your kindness truly brings smiles and warmth to our hearts.

Woke up at 5:30 a.m. to Joji crying in pain 💔
Hospice guided me to give extra opioids today — something I wish I never had to do, but it’s what helps her right now.

Joji was born with a rare genetic disorder — severe homocystinuria, hydrocephalus, and she’s legally blind. After years of pain and countless hospital stays, the pancreatectomy is our last hope to help her find comfort and relief.

Please keep my brave girl in your prayers. 💛🙏

Hope and prayers are with my sweet Joji 💛
She’s been through so much with a strength that continues to inspire everyone around her. This upcoming pancreatectomy is her last hope — a chance to bring her much-needed relief and a brighter tomorrow.

Even in the hospital, with her favorite toy in hand, she shines with pure light and innocence. I pray this surgery becomes the turning point we’ve been waiting for — where pain gives way to comfort, and hope blooms even stronger.

Please keep my brave girl in your prayers. 💛✨🙏 ❤️

🌤️ My kids are my sunshine ☀️

Even with all three of them having complex medical conditions, they light up my world in ways words can’t describe. Their smiles, strength, and pure hearts remind me every day what true courage looks like. 💛

And my dad — my rock — his love and support keep me going when life feels heavy. Watching him care for his grandkids with so much patience and love is a blessing I thank Allah for every single day.

No matter how hard things get, I look around and realize… I am so blessed. Alhamdulillah for family, for love, and for the light that shines even through the hardest storms. 🌈💫

❤️

Some days are harder than words can describe. Having a child on hospice changes everything — your thoughts, your strength, your heart. There are days when the pain in their eyes breaks you in ways no one can see. You wish you could take it all away, trade places, do anything just to bring them comfort.

Watching your child suffer is a pain no parent should ever know. Some days you hold on to hope, and other days you just hold them — because that’s all you can do. Hospice isn’t giving up; it’s about love, comfort, and making sure every moment counts, even in the hardest times. 💔

❤️