Melinda Osborn - ALSA STL Care Service Coordinator

The ALS Better Care Act would ensure that ALS clinics continue to provide quality, interdisciplinary care for ALS patients by creating a supplemental, facility-based payment in Medicare for ALS-related services.

Tell Your Members of Congress: Cosponsor the ALS Better Care Act (H.R. 5663 / S. 3258) Urge your Members of Congress to cosponsor the ALS Better Care Act (H.R. 5663 / S. 3258) today!

Qualtrics Survey | Qualtrics Experience Management The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

https://fox2now.com/news/community/living-with-als-loren-stuckmeyers-story/ Thanks Fox 2 for this nice highlight.

Living with ALS: Loren Stuckmeyer’s story Loren Stuckmeyer used to spend his days outside boating and traveling with his family, but it May of 2020 his life took a turn when he was told he had ALS or Lou Gehrig’s Disease.  Loren…

Another Drug Treatment approved today by the FDA!

Tofersen Approved for SOD1-ALS April 25, 2023 was the second time in less than a year that the FDA approved a drug to treat ALS! The newly approved drug, tofersen, was developed to treat p...

REMINDER:
To ensure every eligible person who can benefit from RELYVRIO (formerly known as AMX0035) will have access to it, Amylyx will provide support to healthcare professionals, people living with ALS, and their loved ones through the Amylyx Care Team (ACT) Support Program.

ACT provides people living with ALS who have been prescribed RELYVRIO, and their loved ones, with a dedicated, single point of contact to guide their treatment journey. ACT will aid with navigating through insurance in an effort to overcome potential barriers to access and provides financial assistance options to eligible individuals with out-of-pocket costs. People with ALS, their caregivers, and healthcare professionals in the U.S. can now call 1-866-318-2989 or email [email protected] to speak with an ACT team member.

I hope everyone who may be interested got to see this ....

Home | ALS MND Symposium Patient Fellows Program International ALS MND Symposium Fellowships for People with ALS MND

Such a heart-warming story!

Pearl Jam give fan with terminal ALS a night to remember Roland Mandel watched from the stage as Pearl Jam played him a cover of Ramones' "I Believe in Miracles."

Some of you may be interested in Radicava now that it may be given in the oral form vs infusion. If you have time today, hop into the educational webinar 1PM Central Time https://app.webinar.net/2x9gJkQXWoz

Evening / Overnight Aide sought for 59 year old woman with advanced rare disease, ALS. You will be asked to attend to her simple requests (she communicates well with a speech device) and you will be giving family respite during the nightime. Please inquire for more details. Pay commensurate with experience.