OTCD Family Support Academy - OFSA

OTCD Family Support Academy - OFSA

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Empowering Ornithine Transcarbamylase Deficiency (OTCD) families with support, resources and tools.

OTCD Family Support Academy 04/10/2026

📣 Our next Sip & Share Hour is happening soon inside OFSA™ and it’s for members only! Grab your favorite drink and join us for a relaxed conversation with other OTCD families.

Joining is FREE:
👉 Join OFSA™

OTCD Family Support Academy An expert-led support system for families navigating OTCD through education, nutrition guidance, practical tools, and emotional support.

OTCD Family Support Academy 03/28/2026

📣If you are a member of OFSA™, please turn on your OFSA™ community notifications so that you do not miss any community engagement! ⭐️

👉🏼Join OFSA™

OTCD Family Support Academy An expert-led support system for families navigating OTCD through education, nutrition guidance, practical tools, and emotional support.

OTCD Family Support Academy 03/15/2026

When Bri collapsed at 5 years old in 2000, we had no answers. Within 48 hours, we had a diagnosis that would change our lives forever: Ornithine Transcarbamylase Deficiency.

There was no community. No course. No tracker. No one to call who truly understood. I spent 25+ years navigating ICU stays, encephalopathy, and a world that had never heard of OTCD.

That is why I built OFSA™. So no family has to walk this road alone the way we did.

If you or someone you love is affected by OTCD, I invite you to join our OFSA™ community. You do not have to do this alone.

Join OFSA™
https://www.skool.com/otcdfamilysupport/about

Nicole Lyles, RN, BSN, Published Author, OTCD Consultant
OFSA™ | Lyles Integrative Health, PC

OTCD Family Support Academy An expert-led support system for families navigating OTCD through education, nutrition guidance, practical tools, and emotional support.

03/11/2026

📣‼️📣Exciting news for our Ornithine Transcarbamylase Deficiency (OTCD) community! The OTCD Tracker™ web-based platform is officially here!

This is a tool I designed specifically for OTCD families to log symptoms, track protein intake, create meal plans, monitor labs, and record crisis events all in one place, accessible from any device.

I am currently accepting a small group of beta testers and I would love for YOU to be one of them!

You will get a completely FREE 7 day trial to explore the full platform.

Spots are limited. If you are interested, send me a private message with your email address and I will send you a personal invite for access to get started!

Nicole Lyles, RN, BSN, Published Author, OTCD Consultant
OFSA™ | Lyles Integrative Health, PC

Photos from National Urea Cycle Disorders Foundation's post 03/11/2026
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