Faye Ginsburg's Dysautonomia Support Group

Faye Ginsburg's Dysautonomia Support Group

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Please join me in celebrating my Presidency of the Dysautonomia Foundation and supporting care and research for those struggling with FD

Dear Friends:

Help me celebrate my birthday, and my first year as
President of the Dysautonomia Foundation, the non-profit that supports research and care for Familial Dysautonomia (FD). I had never heard of this life-threatening Jewish genetic disorder until my daughter Samantha was born with it 23 years ago. That was a tough time; we were in and out of hospitals, trying to get Sam launched into

04/07/2024

Rayna Rapp and I are really thrilled to have Disability Worlds out in the world at last, and grateful to have this beautiful photo of Sam on the cover. Wow!
The book chronicles and theorizes two decades of ethnographic research in New York City’s wide-ranging disability worlds that we traversed as parents, activists, anthropologists, and disability studies scholars. We tell the stories of advocates, families, experts, activists, and artists engaged in larger struggles for disability rights and justice. We show how disability consciousness emerges in everyday politics and practices, track the dilemmas of genetic testing and neuroscientific research, the reimagining of kinship and community, the challenges of “special education” and the perils of falling off the disability cliff...along with the vitality of neurodiversity activism, disability arts, and public culture that are opening pathways into disability futures.

[Duke University Press. Discount code: E24GNSBG]

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