Adam's Ambitions

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Adam's Ambitions To raise awareness about Spina Bifida & show a kid being a kid. This is a page dedicated to our lil' baby Adam John Luke. He also happens to have Spina Bifida.

This page will have updates and photos regarding his condition etc. This also aided in providing information on how others could assist us in the costs incurred during his fetal surgery, bed rest and delivery. Now it's a centralized location that everyone can stay up-to-date on his development and health. He was given a huge step-up in life by undergoing the fetal surgery but he does have and always will have Spina Bifida. He will do great things with his life and we ALL will be here to watch him do it!! Adam John Luke is a feisty, strong willed, determined two year old little boy with beautiful brown eyes and blonde hair. Adam's form of Spina Bifida is called myelomeningocele in which the spinal cord and nerves develop outside of the body and are contained in a fluid-filled sac that is visible outside of the back area. To provide Adam with the best odds in his favor, we flew up to Philadelphia and underwent fetal surgery at Children's Hopsital of Philadelphia at the 26th week of his gestatation to close his spinal cord opening. He was later delivered via C-section at 37 weeks gestation on October 18, 2011. Adam's hind brain herniation reversed because of the fetal surgery closure and he has not required a shunt to be placed into his brain to reduce hydrocephalus. Although Adam does show stress incontinence with his bowel and bladder, he has been fortunate to not require catheterization to empty his bladder. Adam has weakness/paralysis from his ankles down and his left hip dislocates but he doesn't let it stop him. He wears Ankle Foot Orthotics (AFOs) and a month ago began using Twister Cables to help keep his feet straight when walking. He walks with a posterior walker in sprints and is growing stronger daily. We have hopes that he will be independently walking with his walker soon. His orthopedic foresees him being able to walk with arm crutches by preK or sooner. Adam has defied odds, proven medical professionals wrong and surpassed many expectations & I am truly blessed to have received this gift from God.

09/18/2026
Been a while since I posted a N-STIM therapy or NISE-Stim (Non-Invasive Spinal Electrical Stimulation) pic, life got cra...
09/01/2026

Been a while since I posted a N-STIM therapy or NISE-Stim (Non-Invasive Spinal Electrical Stimulation) pic, life got crazy and mom hadn’t been the most consistent but we are starting September off right! Tonight he’s working on that posture that’s gotten whack with his growth. He’s putting on a good fake smile for us. Oh and if you all wanna know really how quickly he’s grown… I found stretch marks on his lower back!

Adam John ended up bending his crutch and Mom took that as a sign he really needed to use two crutches. He stopped using...
08/31/2026

Adam John ended up bending his crutch and Mom took that as a sign he really needed to use two crutches. He stopped using crutches in first grade so beginning to use one crutch was a big deal for him so we knew he would persist he didn’t need two. When these arrived, he swore it was harder to use and made so many excuses why he didn’t wanna use them. We instantly could see a huge difference in his gait & stance so he had no choice. He left for school with a mean mug but thankfully everyone at school commented on his improved gait which made him eventually warm up to the idea. He has the same function and strength with his larger and taller body so of course he needs the help. I’ll try to sneak everyone a video lol Also chose this song since Adam’s said it speaks so much to him, said so many people prayed for him even before he was born.

Today we surprised Adam at school with his new wheelchair! He had grown some since last measurements so after a little a...
08/27/2026

Today we surprised Adam at school with his new wheelchair! He had grown some since last measurements so after a little adjusting it was perfect! He’s now cruising around campus in style. So thankful for his cool new chair. Now we gotta come up with a name for it.

Open House tonight to check out Adam’s classes and teachers for his freshman year. He’s chosen the engineering pathway a...
08/27/2026

Open House tonight to check out Adam’s classes and teachers for his freshman year. He’s chosen the engineering pathway at his STEM school. So proud of his scores on testing that placed him in honors and an AP class. He’s also taking theater as his art elective & he’s really enjoying it. Now to make sure he doesn’t try to get lazy or slack off LOL

Let’s all have a moment of silence for Adam’s childhood… lol Here’s his freshman class photo!
08/21/2026

Let’s all have a moment of silence for Adam’s childhood… lol Here’s his freshman class photo!

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08/12/2026

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Adam’s first day of High School as a Freshman
08/12/2026

Adam’s first day of High School as a Freshman

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New Orleans, LA

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