05/05/2026
Join us as we celebrate 40 years of connecting K-T families! July 10-11 in Rochester, MN . Presentations from some of the world's top specialists, introduction t66o the teams that have worked with KTSG behind the scenes to support this population for years , hearing from the clinical researchers trying daily to improve your life, and a big dinner with guest speaker Carla Sosenko - these are some of the benefits for those attending. Sponsors are helping us keep registration costs low so get your registration in today - registration discounts end June 25. Click REGISTER on the website https://k-t.org.
02/27/2026
Launching a new era for vascular anomalies research
We are in DC starting our journey with the RDCRN and the ARDVARC network! It has been an incredible few days meeting with our patient representatives, investigators, and the leadership team—including our P*s Drs. Denise Adams and Michael Jeng, research coordinator Melissa Casey, and advocacy lead Mellenee Finger. 🤝
Today, for Rare Disease Day, we are at the NIH to celebrate the strength of our community and the collaborations that drive new treatments forward. We are stronger together! 🦓💪
Pictured: Patient Advocacy Groups for RDCRN; ARDVARC leadership team ARDVARC’s Rare Disease Day poster (MJeng)
09/29/2025
Week 4 Spotlight: Klippel-Trenaunay Syndrome Support Group❤
📩 VOTING 📩
In order to vote for K-T Support Group as your charity of choice - Please do so by typing "Vote" in the comments!
🛑 Vote comments made on a shared post will not count (we can't see them)! The votes must be made on the original post ONLY!!
We will tally up the votes at the end of each week and divide the donation proportionately based on the votes. The donations will be announced on Giving Tuesday, December 2nd.
To be fair to every organization, we will only count the votes for the week on the individual posts about each charity.
❌Only votes made between September 29th and October 5th will be counted towards the total.
No social media? No problem! Click the link below to vote on our website - forward the RWC foundation page to anyone who wants to vote!
https://reedwilsoncase.com/reed-wilson-case-foundation-2025/
12/02/2025
10/21/2025
09/08/2025