10/16/2019
Mid-South Hemophilia & Bleeding Disorders Foundation
MSHBDF seeks to provide awareness, advocacy, and education supports in order to prevent additional fatalities because of uncontrollable bleeding.
The Mid-South Hemophilia & Bleeding Disorders Foundation (MSHBDF) was formed in 2012 as a chartered nonprofit under the 501(c) (3) umbrella of Fresh Start Life Inc. MSHBDF was founded by Derek and Sherita Flake. Derek and his youngest daughter Makenzie have both been diagnosed with Von willebrand's disease (VWD) mild, while the oldest daughter Taylor has a diagnosis of mild Factor VII deficiency.
10/16/2019
08/31/2019
Thankful to God for the amazing opportunity to recently be selected to serve on the Benevolence United board of directors.
https://lnkd.in/eWJbPvn
Generally speaking, we help churches build capacity to serve those with special needs.
Benevolence United's Board of Directors — Benevolence United A list of who is on Benevolence United’s board of directors.
https://www.hacacares.org/images/HACA_News/HACA%20News%20June-July%202018.pdf
Makenzie Flake supporting others
05/28/2018
Saluting All of our Men & Women who served ❤️
05/19/2018
Getting good info in Phoenix Arizona@The National Outreach vonWillebrand conference!
03/17/2018
March 15th fact: According to the CDC, between 1978-1984, approximately 12,000 people contracted HIV from contaminated blood transfusions. This resulted in 90% of Americans with severe hemophilia to be infected with the HIV virus, which accounts for nearly 70% of the total hemophilia population. Tragically, more than 50% of those infected have since died. "Bad Blood: A Cautionary Tale" is a powerful documentary that was recently released to tell this story through the eyes of survivors and family members, to educate others about this tragedy, and to ensure this never happens again. This film is currently on Netflix and more information can be found here: www.badblooddocumentary.com
03/17/2018
March 15th fact: According to the CDC, between 1978-1984, approximately 12,000 people contracted HIV from contaminated blood transfusions. This resulted in 90% of Americans with severe hemophilia to be infected with the HIV virus, which accounts for nearly 70% of the total hemophilia population. Tragically, more than 50% of those infected have since died. "Bad Blood: A Cautionary Tale" is a powerful documentary that was recently released to tell this story through the eyes of survivors and family members, to educate others about this tragedy, and to ensure this never happens again. This film is currently on Netflix and more information can be found here:
Today's Bleeding Disorders Awareness Fact:
Factor VII deficiency is a rare blood clotting disorder that was first recognized in 1951. Factor VII is a protein that is needed to help your blood form a clot to stop bleeding after an injury or surgery. It effects 1 per 300,000 - 500,000 people. Factor VII deficiency causes excessive or prolonged bleeding after an injury or surgery.
How do you get it?
It is inherited in an autosomal recessive fashion, meaning both parents must carry the gene to pass it on to their children; it affects men and women equally.
What are the symptoms?
Common: nosebleeds, bleeding of the gums, easy bruising, and prolonged or excessive bleeding following surgery or physical injury, women may experience heavy or prolonged menstrual bleeding. Occasional Symptoms: Bleeding into joint spaces and blood in the urine Severe: bleeding inside the skull or in the gastrointestinal tract
More research is needed!
Although factor VII deficiency is primarily associated with increased bleeding, some people with the condition have excessive blood clotting. It is not known why some people with this condition have problems with excessive blood clotting. Researchers also do not know what determines the severity of the condition; it does not appear to be related to the amount of factor VII in the bloodstream. (National Institute of Health)
What can you do to help? Use your voice because people with rare diseases deserve to live a high quality of life, too! Push for more thorough research and treatment to sustain life.
Today’s Rare Bleeding Disorders Fact:
What is a bleeding disorder?
In people with bleeding disorders, the clotting process doesn’t work properly. As a result, people with bleeding disorders can bleed for longer than normal, and some may experience spontaneous bleeding into joints, muscles, or other parts of their bodies.
03/03/2018
Today’s bleeding disorders awareness fact:
von Willebrand disease (VWD) is a genetic disorder in which the blood does not clot properly. It is caused by a deficient or defective blood protein, von Willebrand factor. VWD is believed to be the most common bleeding disorder. It is estimated to affect up to 1% of the US population.
Symptoms include frequent nosebleeds, easy bruising and excessive bleeding following surgery or dental work. Although VWD occurs in men and women equally, women are more likely to experience additional complications as a result of heavy or abnormal bleeding during their menstrual periods and excessive bleeding after childbirth.
SEVERAL WOMEN HAVE RECEIVED UNNECESSARY HYSTERECTOMIES FOR EXCESSIVE BLEEDING WHEN THEY REALY HAD UNTREATED VWD!!
***Know your status!!***
Dear Community Leaders,
We are currently accepting applications for the Beth Carew Memorial Scholarship. We use an online application process provided by International Scholarship and Tuition Services, Inc. (ISTS). The application link is: https://aim.applyISTS.net/ColburnKeenan/
The application deadline is Monday, February 19th. Deadline extensions will not be provided.
Who is eligible to apply for the Colburn-Keenan Foundation’s Beth Carew Memorial Scholarship?
Any undergraduate student with hemophilia, von Willebrand disease, or a related inherited bleeding disorder is eligible to apply for the Beth Carew Memorial Scholarship as long as all of the below criteria are also met:
1. Applicants must be diagnosed with an inherited bleeding disorder. Students who do not have an inherited bleeding disorder but whose parent(s) or sibling(s) have an inherited bleeding disorder are not eligible to apply, even though they are affected by an inherited bleeding disorder.
2. Please note, this requirement has been changed since last year. Applicants must have volunteered time and energy to any organization within their community. The volunteer time an applicant notes in this application should be unpaid and not required for school credit.
Applicants must be entering or attending an accredited 2 year or 4 year undergraduate institution in the United States to obtain their first undergraduate degree. High school seniors, undergraduate freshmen, undergraduate sophomores, and undergraduate juniors may apply. Students who are pursuing or resuming an undergraduate degree later in adulthood may apply even if there was a gap in their academic career.
Applicants who are past recipients of the Beth Carew Memorial Scholarship may reapply throughout their undergraduate career.
Please let students in your chapter know about this wonderful opportunity.
Please feel free to contact me with any questions.
Thank you.
~ Kim
Kimberly A. Conant
Executive Director
Colburn-Keenan Foundation, Inc.
P.O. Box 811
Enfield, CT 06083
860.578.3687/800.966.2431
Fax 888.345.0259
www.colkeen.org
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