The Fibromyalgia Foundation

Proof of life … 🧘‍♀️

Letting go of your past life of being productive and involved is hard. Mourning of the past life real. It’s a process. The sadness I feel for missing out in celebrations, season hopping and being social let alone productive is my hardest emotion to work through with a chronic illness. Fibromyalgia has so many stages and I finally am at the end of them I think. Accepting that this is a state of my life that is meant to be quiet and that doesn’t mean I am going to give up on enjoying the parts I. An and keeping a positive outlook.
I think fibromyalgia has taught me that if I don’t roll with it and find balance to keep going, the mundane existence creeps in and it’s harder to pull out of.
Point is, it’s ok. Just get up. Show up. Even if that is for yourself and making it through a full grooming session (with some Mae up and clean hair)

Drinking my dinner. Means a lot different thing when chronically ill. At least my protein shakes are chocolate and I can pretend it’s ice cream. 🤦‍♀️

Chronic. Is. Chronic.

Respect for those who live with this on the daily!

Anyone else? 10 years with fibromyalgia, and the long bed ridden stretches, the lack of ability to exercise.
They say fibromyalgia is not deteriorating…I beg to differ.

💜

Facts.

Massive flare up a few days ago. Literally thought I was having a heart attack and a brain aneurysm at the same time.
I started low dose naltrexone about 7 days prior. The level of anxiety, nightmares, doom and gloom feeling, psychotic thoughts overwhelming.
I have always been in control of my thoughts and can easily cheer myself up. Talk myself into calming at any time. Not on this crap compounded medicine. The nausea felt like I was on the open sea and sea sick. The worst I have felt in my life. I realized after the ER stay, as I didn’t put 2 and 2 together. But I stopped taking it and it’s been 3 days. I slept from 730pm last night till 10am this morning. Wow.

I have extra sensitivity to any meds over the last 15 years but this one took the prize for almost sending me into a psychotic state. Scared and alone, I fought through it.

I have always believed in mind over matter but when you have a matter messing with you brain it is a challenge.

It is a rare occurrence but I thought I better share and spread awareness. I would not wish that torment on anyone. 🙏🏻

1mg