American Syringomyelia & Chiari Alliance Project

08/28/2026

Chiari Across the Lifespan: Is It Developmental, Progressive—or Both? 🧠

Petra Klinge, MD explores pediatric and adult presentations, including the potential roles of connective tissue disorders, CSF dynamics, aging, degenerative changes, and acquired tethering.

🎥 Watch “Chiari Malformation Across the Lifespan—Developmental Anomaly or Progressive Disorder?” now on ASAP’s YouTube channel!

Brown University Health The Warren Alpert Medical School of Brown University

08/27/2026

💓 What is orthostatic intolerance, and how can it affect people with Chiari malformation?

Orthostatic intolerance can be a challenging and often misunderstood issue for people with Chiari malformation. In this presentation, Safwan Jaradeh, MD, provides a practical overview of orthostatic intolerance, including POTS and orthostatic hypotension.

🎥 Watch the full presentation now on ASAP’s YouTube channel:
https://www.youtube.com/watch?v=HT2ce-k_MXE

Stanford Neurosurgery Stanford Medicine

08/26/2026

🧠 Why does Chiari I malformation develop? The answer may be more complex than you think.

In this presentation, John Heiss, MD explores the different mechanisms that can lead to Chiari I malformation, including changes in skull and brain development to , , and .

Learn how these mechanisms appear on MRI, why understanding the cause matters, and how treatment can be tailored to the individual patient. Dr. Heiss also
discusses the role of genetics and how advances in research, imaging, and surgical experience continue to shape patient care.

🎥 Watch “Mechanisms for the Development of Chiari I Malformation” now on ASAP’s YouTube channel: https://www.youtube.com/watch?v=BfdoUicp_3k

The NIH Clinical Center

08/25/2026

What can animals teach us about Chiari malformation? 🐾🧠

In this interesting presentation, Dr. Bermans Iskandar explores what we know about Chiari and Chiari-like malformations across species, comparing symptoms,
diagnosis, and treatment approaches with the human condition.

🎥 Watch the latest ASAP conference presentation on our YouTube channel:
https://www.youtube.com/watch?v=nnlEe-VDadI

08/23/2026

💡 Under Pressure: Understanding Chiari & Syringomyelia Surgery

What happens during Chiari surgery and why might it help when syringomyelia is present? In this presentation from ASAP’s 38th Annual Conference Virtual Sessions, Jeffrey Greenfield, MD breaks down the “how” and “why” of surgery in clear, understandable terms.

Dr. Greenfield explains CSF flow, syrinx improvement, symptom relief, and realistic recovery timelines, while helping patients feel more informed and less anxious about what surgery involves.

🎥 Watch the comprehensive presentation and gain a better understanding of what to expect when considering surgery for CM/SM: https://www.youtube.com/watch?v=0YD_VcW0cck

Weill Cornell Medicine Neurological Surgery

08/21/2026

🧠 How do doctors decide when and how to treat Chiari I malformation in children?

Dr. Ravindra explores the most up-to-date literature and how it can help patients and families better understand treatment decisions, including why healthcare providers may recommend different approaches for children with Chiari I malformation.

🎥 Watch the presentation now on our YouTube channel:
https://www.youtube.com/watch?v=aUYFueeHuRw

University of Utah Health University of Utah Neurosurgery The Neuroscience Initiative at the University of Utah

08/20/2026

Could a tethered spinal cord be contributing to your symptoms?

In this session from ASAP's 38th Annual Virtual Conference, Rajiv Iyer, MD provides an overview of tethered spinal cord, including how it is diagnosed,
what to look for during clinical evaluation, and current treatment options.

🎥 Watch "Tethered Spinal Cord" now on ASAP's YouTube channel: https://www.youtube.com/watch?v=1bZRNE7zn8g

University of Utah Health University of Utah Neurosurgery University of Utah Neuroscience Program

08/19/2026

Understanding Syringomyelia, Syrinx & Central Canal Dilation

What do these conditions look like on imaging, and how do they affect the people living with them?

In his presentation from ASAP’s 38th Annual Conference, Michael Levy, MD, takes a closer look at the radiographic features of , , and central canal dilation, as well as the proposed mechanisms behind their development.

🎥 Watch the presentation now on our YouTube channel: https://www.youtube.com/watch?v=KDkalFXKcsI

Rady Children's Health - San Diego UC San Diego Neurological Surgery

08/18/2026

🧬 Could Stem Cell Therapy Offer New Hope for Neurological Disorders?

Stem cell therapy is an emerging area of regenerative medicine that could hold promise for people living with complex neurological conditions.

Dr. Brian Mehling explores the potential of stem cell therapy for syringomyelia, Chiari malformation, and related neurological disorders.

🎥 Watch the presentation now on ASAP’s YouTube channel!
https://www.youtube.com/watch?v=Sab22mJ9Mlc

Brian Mehling, MDTitle: Stem Cell Therapy for Syringomyelia, Chiar...

08/17/2026

🌿 Wellness & Longevity with Chiari, Syringomyelia & EDS
What can you do beyond medical and surgical treatment to support your long-term health and quality of life?

In his presentation from ASAP’s 38th Annual Conference, Barth Green, MD, explores opportunities for wellness and longevity for individuals living with
CM, SM, and EDS.

🎥 Watch the full presentation on our YouTube channel: https://www.youtube.com/watch?v=YN5i0FAupgA