Jeremy was born with a CHD. tetralogy of fallot with pulmonary Atresia. Jeremy Allen Jones was diagnosed with Tetralogy of fallot with Pulmonary Atresia and VSD.
Ive been wanting to do this for five years now just never could put it into words my son Jeremy was born at 37 Weeks a twin birth, the doctor thought it would be best to schedule a C section sense baby B was much smaller the Baby A So July 6th came around it was time for the twins to be born and what we thought was Jeremy was going to be a little smaller than his sister everything went great in de
livery and after the family and friends came to meet the new arrivals everything was great my babies went to sleep in the nursery for the night sense I was all by myself for the night sense Chris had to go back to work and with me just having a c section I wouldn't be able to get up, my babies were asleep in the nursery until one of the nurses noticed Jeremy's color he was turning blue they got him down the the NICU and the next time I seen my precious baby boy he was hooked up to monitors why he was turning blue was were all born with a valve but it closes at birth which is was starting to close but he was missing a valve so his heart was unable to work properly so the gave him medicine to keep that valve open until he got go in for surgery we were at Devos childrens Hospital In grand rapids and there they decide the best place for Jeremy was Motts childrens hospital so Jeremy went by ambulance to Ann Arbor while I was stuck in devos with his twin sister we had not been cleared for discharge but the next day we were and grandma, dad,me and Emma drove to Ann Arbor to be with Jeremy where the next day he would go in for surgery. So at 4 days old weighing only 3 lbs 7 oz Jeremy went in for his very first surgery while myself, his dad and Grandma tried to hold it together for little Jeremy. later he was diagnosed with Failure to thrive and Velocardiofacial syndrome he has had 3 open Heart surgeries first one at just 4 days old the next at 4 months old then again at 14 months and then one Cardiac Catheterization at 4 years old. He is the strongest, toughest, loving little boy I know, he has a great life besides this defect but we ask for you not to feel sorry for him or his family we just love Jeremy the way he is and just glad we have him in our life and we ask you to love him just as Jeremy not his Heart defect! I'm making this page just to keep people updated on Jeremy
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