Jeremy was born with a CHD. tetralogy of fallot with pulmonary Atresia. Jeremy Allen Jones was diagnosed with Tetralogy of fallot with Pulmonary Atresia and VSD.
Ive been wanting to do this for five years now just never could put it into words my son Jeremy was born at 37 Weeks a twin birth, the doctor thought it would be best to schedule a C section sense baby B was much smaller the Baby A So July 6th came around it was time for the twins to be born and what we thought was Jeremy was going to be a little smaller than his sister everything went great in de
02/05/2020
This letter came home today from my sons school! This makes my heart happy.
We just found out yesterday that Jeremy has to have yet another heart procedure.
February is heart month wear red on February 7th show your support!
01/14/2020
Just got a call from Jeremy's cardiologist,there was a significant sign of arythmia cought on his monitor yesterday and some smaller signs throughout but yesterday's was significant enough that he has a call into the doctor at U Of M. What I was told this mean he could need a procedure or have to take medicine but we wont know until further testing
01/09/2020
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Vote for Jeremy! You can vote everyday!! Only takes a few seconds!!
Rock Your Scar 2020 - ages 9-12 Pool days and lazy summer days before having your 4th OHS
08/15/2019
Jeremy's check up went great, doctor couldn't believe how much better his heart sounded and looked. Said his incision looks great. Doctor wasnt to sure about swimming already and cant believe the surgeon told him only 2 weeks for a chlorinated pool, so we might hold of on that for a little bit. But said he can do things as he's comfortable.
08/15/2019
2 week check up.
08/08/2019
This is from Monday, Jeremy had his stitches removed where his tube was he was terrified to get them out from fear it would hurt like everything else he's been through.
He's doing great, just getting really bored sense he cant do much with his restrictions. We have his check up a week from today.
08/01/2019
We are headed home!!! Our family appreciates everyone's thoughts and prayers during this time. Jeremy will continue you to recover at home and have some restrictions for 6 weeks.
08/01/2019
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Jeremy has had a great day today, we went outside walked in the butterfly garden. Taken 3 other walks. He had Chinese for dinner. Minimal pain all day. The goal is to get out of here tomorrow morning aslong as his pain stays under control and he keeps drinking. 🤞
07/31/2019
Jeremy got to meet Bindi the service dog today!
07/30/2019
Jeremy update: he is doing awesome but they are thinking one more night in the ICU to make sure the abdominal pain stays under control, and he hasnt had much of an appetite. But he is looking so much better and happy, he has to blow bubbles a few time a day to keep his lungs going. He is off all fluids so have to push the drinking today.
07/30/2019
The pain seems to come and go now, definitely helping when he gets up and walks a little bit. So here to hopefully a better day tomorrow!
He is all washed up, playing some video games. Hoping he sleeps good tonight he had a rough night last night and has been up all day today.
Seems to be talking more and lots more smiles, the magician came in and did some magic tricks he thought that was pretty cool! She gave him a wand and and magic trick he can show his brother and sister!