The Pioneer Valley Lupus Support Group

10/01/2026

Hey there, my fellow Lupus Warriors! 🦋
I just celebrated my birthday! As I reflect on another year of fighting, winning, and growing, I am filled with so much gratitude for this life. But let’s be completely real for a second—what’s a birthday without a little celebration? For many of us, celebration usually means a big slice of cake, sweet treats, or a fancy cocktail.
While we all deserve to enjoy our milestones, it got me thinking about a topic that doesn't get talked about enough in our community: the hidden relationship between sugar and lupus flares. This article by Greg Dardis of@Kaleidoscope Fighting Lupus goes into more detail about the topic of sugar with references provided

https://kaleidoscopefightinglupus.org/lupus-and-the-health-risks-of-sugar/

09/15/2026

This Saturday folks! Eleven AM EST in - person and online!

09/08/2026

Many people feel very alone, trapped and filled with despair for various reasons, thinking there is no help; no one to listen. There are various resources to reach out to where you can receive help. 💜🙏

National Su***de Hotline : dial 988
Family Caregiver HelpLine | NAMI https://share.google/aZaf9ojrNOTmyClXS
You can also call your local Town/City Hall and speak to the Health Services department.

09/02/2026

This is very sad. When I heard the news last night they stated it was 3 lupus patients that had died during CAR T cell therapy.Novartis was testing an experimental CAR-T cell therapy called rap-cel (rapcabtagene autoleucel). CAR-T therapy involves taking a patient's immune cells, changing them in a lab, and putting them back into the body to attack diseased cells. I have also included the article from lupus.org https://www.lupus.org/news/novartis-bristol-myers-squibb-pause-cart-trials-for-lupus-and-other-autoimmune-diseases

Novartis has temporarily paused screening, randomisation and dosing in eight e...

08/25/2026

Had a bad day with knee pain on Saturday, so rest was needed. On Sunday, we went to the Westfield fair and watched the demolition derby. What a blast! I had never been to one in person.

08/25/2026

From Sunday's demolition derby at the Westfield fair. It was my first and was lots fun!😊

08/09/2026

Last Friday I had an early morning water aerobic workout before the sun's rays hit the pool. on the right are leg x-rays. I was having extreme pain in the left leg and had to get a cortisone shot. My left knee is on its way out in the same way the other one went. Still, I will continue to exercise. You can see the knee replacement in the right knee (part of it looks like the ni**le on a baby bottle)🥰

07/30/2026

TBT. in the fall of 2013, Lupus Foundation of America had a bus that traveled through parts of the northeast. It stopped in Boston when there was a lupus conference at the Hynes Convention Center. It had a really cool interior with a few hands on activities, such as standing in front of the mirror to see how you look with a lupus rash (see photo) Lupus Foundation of America, Northeast Region Lupus Foundation of New England

07/27/2026

by Lupus In Color

07/27/2026

Sorry I've been away.....the fatigue is really getting me💜💜💜🦋🦋🦋🙏🙏🙏