02/28/2018
At the Guardian Hands Luncheon. π
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Get involved! Become a Guardian today, join our team.(C.U.R.E) Creates and Understand a Research that Educates. Help Support our Mission.
We are a non-profit organization that provides support in finding medical experts to get timely diagnosis for individuals suffering from rare diseases. Through advocacy and education we provide support for families and friends who have loved ones with rare diseases.
02/28/2018
At the Guardian Hands Luncheon. π
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πππππ»πππ Show youβre rare because you care! Support Guardian Hands by purchasing some of our adorable socks with the helping hands logo! Buy one pair for $10, or three pairs for $35! Contact Maylan or Grace if interested. Thank you! π
Grace Loeb
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Do you or a loved one have a rare disease? If so, I encourage you to make your own video with a FUN fact about yourself, with the hashtag to help RAISE AWARENESS! Join us with Guardian Hand's in honor of Rare Disease Awareness Month. THANK YOU!!!!!
Grace Loeb Ever Suarez Ray Arthur Maylan ChΓ‘vez
01/03/2018
Hello friends! I would really appreciate it if you all could fill out this nomination form to help a cause that's near to my heart. My neighbor, Grace Loeb, started an organization called Guardian Hands several years ago, which she began in order to bring together families affected with rare disease, and also to raise awareness for the community. And though I only recently got involved with the organization, I quickly developed gratitude towards the cause that aims to form a coalition amongst us all to educate the public that alone we are rare, together we are strong. β€ It only takes a few minutes to fill out, and if chosen, the grant will help Guardian Hands receive funding for their upcoming annual Walk Against Rare Diseases on February 24th. Thank you so much. π
Rare Impact Awards NORD's 2018 Rare Impact Awards, celebrating 35 years of progress in rare diseases.
12/05/2017
Hi friends! My name is Maylan Chavez, and I am both friend and neighbor of the lovely Grace Loeb! She has bestowed upon me the honor of posting on behalf of Guardian Hands' social media sites, and I will now be posting updates on upcoming events and opportunities!
Join us as we start a new season of giving back and helping those in the rare disease community! With love in our hearts and spirit in our blood, we'll come together stronger than ever! Our next official event will be FEBRUARY 24TH, 2018! More details to come!
And a little about me, for those who are curious. I am Grace's neighbor and this past year I was happy to join her Walk Against Rare Diseases for the first time! I am 23 years old and I was diagnosed with Spinal Muscular Atrophy type II at a very young age. I know what it's like to have a rare disease and all the obstacles that come with it. For this reason, I'm so happy organizations like Guardian Hands exist to promote awareness for the community!
Please stay tuned as I'll be bringing you exciting news soon on our next events and activities.
Much love to you all, and happy Monday!
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02/17/2017
Vendors Needed for Events in Florida
4th Annual Walk Against Rare Diseases
Form a Team. Come Walk and Help us Help... Rare Disease Community Deserves to be Heard! PATIENT VOICE -
MAKING THE VOICE OF RARE DISEASES HEARD!
Without awareness, there is no funding. Without Funding, there is no Research. Without Research, there is no Cure. Without a Cure, there is no Hope. We nee...
Grace Loeb Yessenia Gonzalez
Thank you for being part of our journey the fight against rare diseases it's far from over. Let's continue to raise awareness to break the borders of isolation hand in hand, walking together we can make it happen!
01/11/2017
Getting ready for the Walk Against Rare Diseases next month. Please mark your calendar Saturday, February 25th, 2017
Hialeah Gardens Senior High School at 9 AM
Make a team with your Friends and Families and Coworkers, come walk and help us raise awareness for the 30 million Americans Affected by Rare Diseases.
www.guardianhands.org
02/25/2016
Only 4 days for the Walk Against Rare Diseases, where very talented artist are donanting their time to raise awareness of rare diseases. 1 in 10 American is affected by a rare disease. Come walk with us and let's have FUN! see you Sunday!!!
THisisAngelic Angelic next event this Sunday Grace Loeb
02/25/2016
Angelic next concert in Miami to benefit "Guardian Hands Foundation β€οΈhttp://www.guardianhands.org.