10/02/2026
October is Rett Syndrome Awareness Month💜
Rett syndrome is a rare neurological disorder that can affect nearly every aspect of a person’s life. Most often caused by a spontaneous change in the MECP2 gene, Rett syndrome can impact movement, communication, breathing, and many other essential functions.
Rett syndrome can affect girls and boys of every race and ethnicity. And every person living with Rett is more than a diagnosis—with their own personality, interests, relationships, experiences, and story.
This October, we're inviting you to Know Rett. See the Person. Know Their Story.
Because awareness is about more than knowing what Rett syndrome is. It’s about knowing the people who live with it, amplifying their voices, supporting families, advancing research, and moving closer to more treatments and cures.
💜 Join us this October. Share your story, spread awareness, and help fuel progress for everyone impacted by Rett syndrome.
Because awareness starts with knowing Rett—but connection starts with knowing them.
🔗 Learn more and get involved: https://www.rettsyndrome.org/get-involved/raise-awareness/
