KGI Students for Rare - NORD Chapter

drumroll pleaseee ... we are happy to formally introduce you to the new 2026-2027 Executive Board for KGI's Students for Rare NORD chapter 🥳🤍🦓🖤🤩

Thank you to everyone who attended KGI’s NORD SFR Rare Disease Day 2026 ✨🦓💪

Special thanks to our speakers and executive board who helped make this event happen. We are grateful to all who help raise awareness for rare diseases every day!!

Together we are making a difference by helping those whose voices aren’t heard 🤍

Did you know that 1 in 10 Americans is living with a rare disease?

Join KGI’s NORD chapter as we raise awareness for our neighbors and loved ones living with rare diseases in honor of Rare Disease Day 2026. 🦓🤍✨

We will be hosting speakers, interactive games, and raffles. Come share stories, build community, and help us fundraise to support rare disease advocacy and research!

📣This event is open to all students, families, and community members.

📣Students, families, and healthcare providers with lived or professional experience in rare disease are especially encouraged to attend.

Lunch and refreshments will be served, please RSVP at the link in our bio to let us know of any dietary restrictions. 🤍

WE HOPE TO SEE YOU ALL THERE!! 🦓🌟💪

🦓📣 NORD SFR Spring Meeting 📣🦓

Please join us for our next meeting! We’ll be hearing from KGI alum Tyson Fetzer, followed by a general Q&A session. Tyson is the Vice President of Manufacturing and Supply Chain Operations at Genetix BioTherapeutics and brings extensive clinical and commercial experience in the biotechnology industry.

Students interested in careers in cell and gene therapy development or biotech manufacturing and operations are especially encouraged to attend.

As always, food and refreshments will be provided.

We hope to see you there!✨

Welcome back Beaker Bees! Start off the spring semester with a new custom shirt supporting KGl’s NORD Students For Rare 🦓🤍✨

Buy before 2/13 for $5 off!

Welcome back Beaker Bees! Start off the spring semester with a new custom shirt supporting KGI’s NORD Students For Rare 🦓🤍✨

Buy before 2/13 for $5 off!

Scan QR code or Link in bio to purchase 🐝

Starting off November with our 3rd general meeting!💙

This month we’ll be joined by Lukas West, a YARR (Young Adult Rare Representative) 🌟 who will be sharing his experience living with Functional Neurological Disorder and the clinical misconceptions he’s faced as a young adult with a rare disease.

This is a great opportunity for future providers and genetic counselors to gain insight into the patient experience. 🧬🥼

We will be serving Porto’s and refreshments! 🥐

October was such a fun and busy month for the KGI NORD team! From awareness events to Halloween fun, we had a blast connecting with our community. Can’t wait for what’s next!! 💙👏🦓

Such a great weekend, Jill and Cindy were able to attend NORD 2025 Breakthrough Summit in Washington, DC! It was amazing to connect with individuals in all walks of life within the Rare Disease Community. They were able to hear patients stories and journeys, connect with other Students For Rare Chapters, meet caregivers and practicing professionals within the Rare Disease industry, and explore all of the exciting new innovations happening within the community (with a side of sight seeing of course!) We cannot wait to implement all of the new knowledge into our KGI Students for Rare Chapter!

Please join us for our 2nd general meeting featuring guest speaker Thomas Lester 🎓

Thomas is an MBS KGI alumni currently working as a consultant for InspireBio. Thomas facilitates collaboration between industry leaders, academics, and patients to develop therapies for rare dieases.

We are excited to hear about his work and hope to see you all there!🦓✨🥼