07/18/2020
Just a brief peek of what it can be like, to live with Alzheimer's.
"I walked to the mall and on my way home a sweet lady asked me where the nearest medical clinic was.
While giving her directions, she seemed overwhelmed so I told her Iâd walk to the clinic with her.
On our walk, she told me she had Alzheimerâs and forgets things easily.
She told me her name, Mary, and that she was from Scotland.
She told me about her grumpy daughter and her helpful son.
She told me about her life before Alzheimerâs took away her memory.
She told me jokes.
She told me why she needed to go to the clinic.
She showed me her crazy loud finger whistle and that she could whistle just as well with her thumbs!
She could tell me many things, but had already forgotten where we were walking.
At this point I realized the clinic would probably not see her without family but we went anyways and waited a half hour to see the doctor.
She realized she didnât have her phone with her after searching everywhere so we couldnât call family.
The doctor told me a family member needed to come along and that he could not treat her today.
Mary said she knew how to get home from the mall and invited me to have a tea with her at McDonaldâs.
She said everyone knew her at the mall because she went there every day.
She walks from home to the mall the same route so itâs now in her long-term memory so she can remember it.
At McDonaldâs everyone called her by name.
At one point when she was coming back to the table she didnât recognize me and asked if we were sitting together.
I explained how our afternoon had gone.
She told me her daughterâs phone number, so I phoned her and told her I was sitting with her mother at the mall and would wait until she came to get her as I wanted to ensure she made it home safely.
No thank yousâŚdaughter asked to speak to her mom.
She wasnât coming to get her.
Mary cried after she got off the phone with her daughter.
She could not remember her sonâs phone number.
After digesting the fact that her own young adult daughter was not coming to get her mother I told Mary that Iâd walk home with her.
We talked some more while we drank tea.
Mary is kind, sweet, confused, friendly, chatty, and so starved for human connection.
She was thankful to have someone to talk with and spend time with.
She told me that she really liked me and that she doesnât give out a compliment like that often.
She asked why we were walking together.
She asked how she got to the mall.
Sheâd completely forgotten.
I walked her to her door; her daughter came out, and rolled her eyes as I explained that I walked home with Mary as it was on my way home and I wanted to make sure she got there safely.
I also told her about the clinic and how Mary and I had been together for a few hours.
I was greeted with more eye rolls and no warmth whatsoever.
There was no thank you, nothing.
I donât live with someone with Alzheimerâs so I am sure itâs complicated and difficult.
I thought about what kind of a life Mary must have now.
The not remembering.
The dependence on others.
The impatience of caregivers.
The losing of the memories.
The loss of short term memory.
The difficulty going somewhere new.
The scary feelings.
The nervous feeling she told me about when she knows she should remember something but doesnât.
Her shaking hands.
Her feeling stupid because she doesnât remember like she should.
The way some people treat her, even family.
The sadness she feels.
How she holds onto the pride she felt when she once drove a huge bus to Arizona and the whole group made it there alive.
I didnât want to leave.
I wanted to stay there with Mary.
I wanted to protect her and make her feel loved and needed and appreciated.
Mary smiled and I gave her the biggest hug and told her what a lovely afternoon Iâd had.
As I walked away, leaving her with her daughter, I burst into tears and cried all the way homeâŚ25 minutes, I cried.
Iâm still crying as I write this.
Mary wonât remember me.
Mary wonât remember the talk we had, why she went to the clinic or that she went to the clinic at all, or that we spent three hours together this afternoon.
Mary wonât rememberâŚbut I WILL."
Credit: Melinda Howlett Gill