Seizure Tracker

Clinical trials help move epilepsy care forward.

Every medication or therapy available today exists because people participated in research. Clinical trials are a formal way to study better ways to diagnose, prevent, treat, and understand epilepsy.

For people living with seizures, participating in research may help advance future care and, in some cases, provide access to therapies not yet widely available.

Seizure Tracker’s Clinical Trials page helps explain what clinical trials are, what to consider, and how to begin exploring studies that may be relevant to you or your loved one.

Learn more: https://bit.ly/4e4P0h4

Help shape how epilepsy treatment success is measured.

If you have—or care for someone with—a neuromodulation device like RNS, VNS, DBS, or EASEE, your experience matters. These therapies may affect more than seizure counts, including mood, thinking, energy, and daily life.

This survey asks patients, caregivers, and clinicians which outcomes matter most when evaluating the success of neuromodulation treatment.

It takes about 10–15 minutes, and your input can help create better ways to measure the full impact of epilepsy treatment.

Take the survey: https://www.myepilepsylife.org/

Research in epilepsy care is evolving beyond seizure counts alone.

A recent study involving participants recruited through Seizure Tracker explored what quality-of-life outcomes matter most to people living with epilepsy and functional seizures. Researchers found that mental health, fatigue, cognition, healthcare burden, and emotional well-being were among the top concerns identified by patients, with suicidal ideation emerging as one of the most significant differences between groups.

These findings reinforce the importance of whole-person epilepsy care that includes both neurological and mental health support.

At Seizure Tracker, we’re proud to support research efforts that help advance more informed, compassionate, patient-centered care.

Learn more: https://bit.ly/3KmMDuc

Today, on TSC Global Awareness Day, we’re raising awareness of Tuberous Sclerosis Complex (TSC), a rare genetic disorder that affects nearly 1 million people worldwide.

Epilepsy is one of the most common neurological challenges associated with TSC, affecting approximately 85% of individuals living with the condition. Tracking seizure activity can play an important role in understanding patterns, evaluating therapies, and supporting informed care decisions.

Learn more about seizures and TSC in our Seizure Success® and You! library: https://bit.ly/4ntjA76

During National Women’s Health Week, we’re recognizing the important connection between women’s health and epilepsy care.

Hormones, menstrual cycles, pregnancy, and birth control can all influence seizure patterns, which is why Seizure Tracker offers tools designed to help women track and better understand these changes over time.

By collecting detailed information, individuals and care teams can have more informed conversations about seizure management and treatment decisions.

Learn more: https://bit.ly/3LcjtOy

Managing seizures often involves a team, and the Seizure Tracker Valet system helps keep everyone connected.

With Seizure Tracker Valet access, you can share a secure “Valet key” with caregivers, medical providers, or school staff. Each person receives only the tools you allow, whether that’s recording events, reviewing data, or generating reports.

You stay in control, and your support network stays informed.

Learn more: https://bit.ly/4p3rqUg

Vagus Nerve Stimulation (VNS) is one of several tools used to help manage seizures when medications alone aren’t enough.

VNS therapy uses a small implanted device that sends mild electrical pulses through the vagus nerve to the brain, helping reduce seizure frequency and severity over time.

Tracking plays an important role here.

By logging seizures, timing, and therapy changes, individuals and care teams can better understand:

• How seizure patterns evolve over time
• How therapies like VNS may be impacting control
• What adjustments may be worth discussing

At Seizure Tracker, we’re continuing to build tools and resources to support these conversations.

Learn more about VNS and seizure management: https://bit.ly/4tefnpj

If you’re using diet therapy for epilepsy, are you connecting your ketone and glucose data to your seizure tracking?

With the Keto-Mojo + Seizure Tracker integration, your readings can sync automatically so you don’t have to track everything separately.

This helps you:
• Keep all your data in one place
• See how ketone and glucose levels relate to seizures
• Share clearer, more complete information with your care team
• Track your Glucose Ketone Index (GKI) through the Keto-Mojo app

Bringing these data points together can make it easier to spot patterns and support better decision-making over time.

Learn more: https://bit.ly/4rOUKAx

Diet therapy can play an important role in seizure management, but tracking it correctly is key.

Seizure Tracker makes it easy to:
• Log diet therapy schedules
• Record start and end dates
• Track intake goals and details
• Document seizure impact and side effects
• Add notes over time to monitor progress

Taking the time to track these details can help you and your care team better understand what’s working and what’s not.

Learn how to track diet therapy step by step: https://bit.ly/3OefOS7

Did you know you can easily export your seizure data and share it with the people who need it most?

Seizure Tracker provides simple tools to help you:

• Generate detailed reports
• Share data with clinicians and care teams
• Participate in research
• Export your entire diary in multiple data formats (including MS Excel)

Individual data sharing is user-controlled, with options for de-identified exports to protect privacy.

Because tracking is just the first step—using your data is where real impact happens.

Learn how to export your data: https://bit.ly/4mCxzad