09/20/2026
We spend so much time talking about autism in childhood, but what happens when our children become aging adults?
Who will understand their communication, sensory needs, routines, and medical history when we are no longer here?
For autistic adults with profound support needs, the loss of a primary caregiver can mean losing the person who understands them best.
We need more research on autism and aging, better long-term care options, appropriate housing, and support systems that do not depend entirely on aging parents.
As a mom, I donât just worry about my childâs future. I worry about her future without me.
Our children deserve to grow old with dignity, safety, and people who understand their needs.
Autism doesnât end at 18. Neither should the research, resources, or support.