Aleisha’s 120km for Endometriosis

13/03/2026

Today Is double dollars day 🎗️💛
Tomorrow we are hiking to Lake Head Hut. So that should knock off 20km off the total. 😂

https://www.facebook.com/share/1KMer187XJ/

01/03/2026

It’s March, baby! 💛

It’s officially Endometriosis Awareness Month, and this year I’m stepping it up — literally.

I’ll be walking 120km this month to raise awareness and funds for Endometriosis New Zealand .

Endometriosis affects 1 in 10 women yet it’s still so misunderstood and underfunded. The delays, the pain, the exhaustion — it’s real, and it deserves more attention, better support, and better treatment options.

So follow along with me this month as I clock up the kms. I’ll probably need some encouragement (and maybe snacks 😂), but every step is for awareness, advocacy, and change.
Let’s do this 💛

https://120-challenge.raiselysite.com/aleisha-hosie

18/02/2026

Big news for our Endo community 💛

Endometriosis New Zealand has applied to Pharmac for public funding of two hormonal treatments — Visanne (Dienogest) and Ryeqo.

Right now, these medications can cost hundreds of dollars every few months. For many people, that makes them simply unaffordable. When you’re already battling a complex, painful condition like endometriosis, cost should not be another barrier.

Access to modern, evidence-based treatments shouldn’t depend on your bank balance.

This is about fair access. It’s about not being left behind. It’s about better outcomes for all of us living with endometriosis.

Endometriosis New Zealand has submitted applications to Pharmac seeking public funding for two important hormonal treatments: Visanne (Dienogest) and Ryeqo.

For many people living with endometriosis, access to effective treatment options remains one of the biggest barriers to managing this complex condition. Without funding, these medicines can cost hundreds of dollars every few months, placing them out of reach for many.

Endometriosis affects an estimated 120,000 people in Aotearoa. No single treatment works for everyone, which is why having a range of funded options is essential for personalised care.

This advocacy work is about ensuring people with endometriosis in New Zealand are not left behind and can access the same modern, evidence-based treatments available overseas.

We will continue to advocate for fair access to care and better outcomes for our community.

💛 Learn more about this advocacy work and more below: https://nzendo.org.nz/advocacy/

13/02/2026

My toxic Valentine 💔
The only relationship I never asked for but can’t seem to break up with. 😂

Endometriosis New Zealand to see what you can do for the loved ones in your life ❤️

12/02/2026

💛 This is my endo story — and it shouldn’t be happening in NZ

I went to my GP with severe pain and heavy bleeding and was told I’d see a specialist in about 2 months.
I waited and waited, after 5 months I called Nelson Hospital for a update on my appointment. I was told the public system was only seeing “urgent” cases or people who’d already waited over a year. During that time, I was in pain most days, exhausted most of the time, worrying about what was actually wrong with me — so I just had to hang on.
I couldn’t.
With help from my family, we paid to go to see a private gynecologist. He said a hysterectomy was my best option to end the pain and the horrendous periods. When I had my hysterectomy they found my ovaries, uterus and bowel were fused together with scar tissue from endometriosis — something that had been missed while I sat on a waitlist.
Then, after 19 months, the public system finally called…
Just for a first appointment.
This isn’t just my story. This is what happens when endometriosis isn’t taken seriously. People are suffering, losing quality of life, having to miss work and social events. They are being forced to pay privately just to get answers.

🗣️ Endometriosis care in NZ needs urgent action.
Shorter wait times. Better access to specialists. Earlier diagnosis. Real funding.
We deserve better than being told to wait while we live in pain.

This is where Endometriosis New Zealand helps NZ woman by having their voices heard and fundraising for better support and care.

https://www.rnz.co.nz/news/national/556985/nineteen-month-wait-to-see-a-specialist-i-was-suffering-severe-pain-all-of-the-time

The Nelson woman's bowel and ovaries were fused together with scar tissue from endometriosis.

10/02/2026

Living with endometriosis.
Symptoms that are invisible to others.
Chronic pain, extreme fatigue, extreme stomach cramps, bloating, aching hips, legs and pelvis.... Just to make a few.

10/02/2026

I’m fundraising for Endometriosis — a condition that has quietly shaped so much of my life.
For years I pushed through pain, exhaustion, and uncertainty, often feeling like I had to justify what I was experiencing. Endo is invisible, misunderstood, and far too often dismissed — yet it affects so many of us.
Sharing my story hasn’t always been easy, but if it helps even one person feel seen, believed, or get answers sooner, then it’s worth it. My journey was recently shared in an RNZ article, and I’m proud to use my voice to raise awareness and support for better understanding, research, and care.
If you’re able to donate, share, or simply learn more — thank you. Every bit helps, and every conversation matters 💛

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