A community of 12 plus sickle cell non governmental organisation in Nigeria forming a coalition for the purpose of education, awareness and advocacy
12/05/2026
Happy Birthday, Pelumi Edwin 🎉
Today, we celebrate your impact, dedication, and amazing contributions to the sickle cell community as the Media Director of the Coalition of Sickle Cell NGOs.
Wishing you joy, good health, greater achievements, and many more beautiful moments ahead.
From The Coalition of Sickle Cell NGOs of Nigeria, we wish you a prosperous life, good health and more wins.
11/05/2026
With profound sadness, we mourn the passing of Ms. Toyin Adesola, , Immediate Past Chairperson of the Coalition of Sickle Cell NGOs in Nigeria and Executive Director of Sickle Cell Advocacy and Mgt Initiative .update
Ms. Toyin Adesola was a passionate advocate, an inspiring leader, and a compassionate force within the sickle cell community. Through her dedication, service, and unwavering commitment, she touched countless lives and strengthened the collective voice for people living with sickle cell disorder across Nigeria.
Her legacy of impact, kindness, and leadership will continue to inspire us all.
We extend our deepest condolences to her family, loved ones, colleagues, and the entire sickle cell community.
May her gentle soul rest in perfect peace.
11/05/2026
We are pleased to welcome Mrs. Olunaike Josephine as the Northern Coordinator of the Coalition of Sickle Cell NGOs. ❤️
A passionate advocate with lived experience of sickle cell disorder, Mrs. Olunaike is a certified genetic counsellor, Founder of Beulah Sickle Cell Foundation, and Convener of the Beulah Sickle Cell Welfare Clinic. She also contributed to the development of the second edition of the National Guideline for the Control and Management of Sickle Cell Disease in Nigeria.
Her dedication to advocacy, awareness, and improved care continues to inspire meaningful change within the sickle cell community.
Please join us in welcoming her to the team. 🎉
Something powerful is coming this June. ☂️❤️
Every year, we come together not just to walk—but to be seen, to be heard, and to stand for millions living with sickle cell.
The Red Umbrella Walk is returning.
This June. One promise: this year will be bigger, louder, and impossible to ignore.
Stay close. You won’t want to miss this.
01/05/2026
Happy Birthday, Ms. Osasele Esangbedo
Today, we celebrate you, your impact, your kindness, and all the amazing work you do in the sickle cell community as the Vice Chairperson of the Coalition of Sickle Cell NGOs.
Wishing you a new year filled with joy, good health, greater achievements, and countless reasons to smile.
From The Coalition of Sickle Cell NGOs Nigeria, we wish you a prosperous life, good health, more wins, and more beautiful moments ahead!
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30/04/2026
SPOTLIGHT OF THE MONTH
This month, we shine a spotlight on exceptional individuals whose commitment, and service strengthened the success of our Blood Donation Drive (a coalition of sickle cell NGO’s initiative), hosted by the LASU Sickle Cell Society on Thursday, April 16, 2026, at the LASU Health Centre.
Through their representation, coordination, and unwavering support, they helped advance the mission of improving access to safe blood and amplifying awareness for persons living with sickle cell disorder.
We celebrate and appreciate:
.durodola
Your efforts reflect true service, teamwork, and impact.
Thank you for standing in the gap and serving with purpose.
28/04/2026
Are you ready for this one????
Something bigger. Something better.
We can’t keep it in any longer…
Coming this June.
Stay close and keep your eyes on this space as we gradually unveil what we’ve been working on.
Anticipate… watch this page.
To everyone who showed up at the Coalition of Sickle Cell NGOs/LASU drive and gave a part of themselves—thank you. 🩸❤️
Your kindness, time, and willingness to donate will save lives and give sickle cell warriors another chance to keep fighting.
We’re deeply grateful for every single donor and everyone at LASU — you made a difference.
18/04/2026
Happy Birthday, IK 🎉🎂
Today, we celebrate not just you, but also your impact, your kindness, and all the amazing work you do in the sickle cell community as the Communications Director of the Coalition of Sickle Cell NGOs.
Your dedication continues to inspire and uplift everyone around you.
Wishing you a new year filled with joy, good health, greater achievements, and countless reasons to smile.
May this chapter bring you everything you’ve been working toward and hoping for.
The Coalition of Sickle Cell NGOs wishes you more life, more wins, and more beautiful moments ahead! 🥂✨
🎉
18/04/2026
As Chairperson of the Coalition of Sickle Cell NGOs, I am proud to share that our collective voice was represented at the maiden meeting of the Lagos State Non-Communicable Diseases (NCD) Technical Working Group (TWG).
What is a TWG?
Think of it as the “engine room” of public health. It’s where vision meets technical blueprints. By having the Coalition at this table, we ensure that sickle cell disease isn’t just an afterthought, it’s integrated into the broader
The Focus:
We commend the Lagos State Ministry of Health for an agenda that prioritizes:
✅ Addressing policy gaps in newborn screening.
✅ Strengthening ambulance and pre-hospital care.
✅ Enhancing early detection at the PHC level.
We aren’t just talking about change; we are helping design the systems that make it possible.
Contd. in comment section.
- , Chair!
13/04/2026
Give the gift that truly matters — life. 🩸❤️
Join us as we partner with the Lagos State University Sickle Cell Society and the Lagos State Blood Transfusion Commission, to make a lifesaving impact through blood donation.
Every drop counts, especially for individuals living with Sickle Cell Disease who rely on safe blood for their lifesaving treatments.
📅 Thursday, 16th April 2026
📍 LASU Health Centre
⏰ 11:00 AM
Come donate one pint and you could can save up to 3 lives.
💪🏽 Be someone’s hero!!