CSF Leaks Education, The Gambia

20/05/2026

Brain Injury is no act...

24/03/2026

Here is all the brain injury awareness you need to remember...

04/02/2026

04/02/2026

Brain Injury: more than anyone knows...

04/02/2026

04/02/2026

🌍 300 million people. One global community.

Rare diseases affect millions, yet research and funding is limited. Funding rare disease research is not only a moral imperative, it’s a smart, forward-looking investment. Discoveries in rare disease science often pave the way for treatments in cancer, neurology, and beyond, sparking progress across all of healthcare.

⚖️ Equality gives every disease the same level of funding.
💜 Equity for rare diseases means investing more where it’s needed most.

👉 Learn more about equity: https://go.rarediseaseday.org/equity

04/02/2026

No one ever thinks about brain injury until that is all they can think about...

03/01/2026

📺 CSF Leaks on BBC Wales TV News!

We’re proud to share that our trustee Dr Bern Hard featured on BBC Wales TV News, raising vital awareness about CSF leaks and their impact on patients.

👁️ Watch the interview from minute 2:00 to 4:23 here:
👉 https://www.bbc.co.uk/iplayer/episode/m002p5v6/bbc-wales-today-evening-news-29122025

(Link expires at 6:28 PM GMT on 30/12/25 – don’t miss it!)

Thank you, Dr Bern, for championing better diagnosis and care for those living with CSF leaks. 💙

03/01/2026

Shout out to my newest followers! Excited to have you onboard! Akang Hardhin, Aleya Helmi, Fatima Ibragimova, Iyyang Ajja, Lisnawati Ilis, Edo Ran's, Alfi, Татьяна Соленова, Aji Audi, Will Jack Will Jack, Nur Ria Fitriani, Francisco Javier Cortes Moreno, Sandeep Sah, Bauirjan Axmedov, Hurshid Yuldashev, Salahodin Ampaso, Ulugbek Mukimov, Abdufattox Paxriddinovich SHarifbayev, Zoheir Cherif, Asirin Alsad, Пасат Михайлович, Ariyani Tudu, Follow Melinda, Nisa Rohit, Baron Tobi, Sur Yana, Baierly Davidov, Yayyi Vlog, Shaxzod Shukurov, Otabek Ergashov, Fotima Toirova, Dwi Indrawati, Asil Bek, Mi Yoyok Yoyok, Бекмурат Матмусаев, Jowie Nariz, Souban Keonakone, Johongir Holmuminov, Maryann Martin, Каир Тугельбаев, AlexaNails Villegas, Perintis Rantau, Muqaddas Yuldasheva, Rizvan Heydarov, Utkir Hujamkulov, Ихтияр Муратов, Villa Ismayıllı Villa Ismayıllı, Refkhy Subagja, Nargiz Offical, Steff Campos Abud

03/01/2026

What is a CSF leak?
What is a spontaneous CSF leak?
What is a traumatic CSF leak?

While at a conference in Malta, she was hit by a rare, debilitating brain condition.